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Brave Little Warrior

Organized by: Hannah Peters

Hannah's Photo
Hannah's Photo
Hannah's Photo
Hannah's Photo
Hannah's Photo
Hannah's Photo
Hannah's Photo
Hannah's Photo
 

Update on our trip to Delaware
March 10, 2017

Hello everyone,  Two more days until we leave for our big trip to Delaware for Jude's MRI and appointments at AI DuPont Nemours Children's See More

THE STORY:

Meet Jude! 


Jude was born with a rare and lethal form of dwarfism called Rhizomelic Chondrodysplasia Punctata (RCDP). There are only 54 cases diagnosed worldwide.


We were told Jude wouldn't make it two weeks and he is now 19 months old! Jude is a fighter and fights hard every single day.
All of the RCDP children are fighters.

Let me tell you a little about Jude.

Jude has had five surgeries and several other medical procedures. He has six hours of therapy every week, he was born with cataracts in both eyes (which is why he wears the glasses), his hips and shoulders are out of place, all his joints are contracted, he eats by a feeding tube, requires oxygen and his all around medical routine is pretty vigorous. Jude still has many surgeries and treatments in his future.

The FDA is working on the approval of a drug that they think could be a possible cure. But we need funding and in order to get that, we need to make people aware of RCDP. We have high hopes that the clinical trial for this new drug could start the beginning of 2016!

We have been desperately seeking out and fighting for a national platform to raise awareness and funds for research and while we have succeeded in getting their story in the New York Times and several other news outlets, it's only the beginning. We are still in this fight. Will you help us? You can share on Facebook, Instagram, Twitter or even word of mouth. You could help us save these precious children by just a simple share.

Here are our hashtags we use
#HOPEforRCDP #RCDP #judestribe #bravelittlewarrior #prayforjude
 

Thank you for all of your support! 

 

-Hannah (Jude's mama)

 

DONATE

To This Fundraiser

$6,405

MONEY RAISED
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  • Tabitha Sola

    $20

  • Donna Kay Strader

    $100

  • Anonymous

    $25

  • Anonymous

    $10

  • Anonymous

    $20

  • Anonymous

    $25

  • wyttenbach family

    $10

  • Stephanie, Aaron, and Eli Heironimus

    $20

  • Kendall & Jordan Johnson

    $10

  • Joe Deimund

    $100

  • Vanessa

    $20

  • Anonymous

    $10

  • Jim and Michelle

    $20

  • A Fellow Jude Baby

    $25

  • Alison Hill

    $20

  • Arleth Torres

    $15

  • Anonymous

    $20

  • Kristie, Charlie and Finley

    $50

  • Anonymous

    $25

  • The Moralis Family

    $10

  • Jen Gamon

    $10

  • Crumlish Family

    $50

  • Anonymous

    $25

  • Lori Hammell

    $30

  • Anonymous

    $40

  • Julie W

    $20

  • Claudia Chan

    $100

  • Jennifer Clark

    $25

  • Anonymous

     

  • Susie Davidson

    $50

  • Martha Archuleta-Taylor

    $100

  • Virginia Hammond

    $50

  • Billie Webster

    $25

  • The Eckert's

    $50

  • God

     

  • Molly M

    $25

  • The Cleaves family

    $50

  • ALEXA

    $25

  • Anonymous

    $25

  • Natasha S

    $25

  • Barbara Luna

    $15

  • Anonymous

    $25

  • Lindsey Hermida

    $100

  • Misty Ansted

    $25

  • Juanita M Garnto

    $25

  • Michelle Merks

    $25

  • Anonymous

    $10

  • Ken Peterson

    $50

  • Laura and Sohrob

    $50

  • Jamie Belcher Larboni

    $25

  • Blanca Contreras

     

  • Juan Martin

    $100

  • Gabriel & Elijah

    $50

  • G-ma Sue Family

    $100

  • Martha Archulets Taylor

    $50

  • Lori R Hammell

    $25

  • Lindsey Hermida

    $100

  • G-ma Sue Family

    $100

  • Anonymous

     

  • Marris Ambrose

    $250

  • Jackie Keber

    $250

  • Barbara and Lori Luna

    $15

  • Brendon Herrera

    $100

  • Mary Anne Clairmont

    $50

  • Anonymous

     

  • Abi Hiebert

    $25

  • Sarah Ortiz

    $100

  • G-ma Sue Family

    $100

  • Katarina schellhardt

     

  • Jane Bowley

    $25

  • Anonomyous

    $10

  • Anonymous

    $25

  • Alexandra Lamb

     

  • Anonymous

    $25

  • Mindy Feemster

    $25

  • Bridget Hansen

    $25

  • Dianne Condon

    $25

  • Nallely

    $10

  • Jena Mickey

    $10

  • Barbara L.

    $25

  • Lindsey Hermida

    $150

  • Lindsey Gallo

    $100

  • Love Lucy

    $150

  • Brendon Herrera

    $50

  • Carol and Stacey Adams

    $25

  • Owen Family

    $50

  • Anonymous

     

  • Marcus & Kelly

     

  • Anomalously

    $25

  • TINA Totten

    $10

  • Brian Greendahl

    $25

  • Chanel Montenegro

    $30

  • Ashley Honour

     

  • Nicki Ray

    $40

  • Anonymous

    $25

  • The White Family

    $50

  • Beals and Rapp family

    $50

  • Kaitlyn Barger

    $25

  • Mimi Banks

    $180

  • Emily Veronie

    $15

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Organized by

Hannah Peters

This is a direct to organizer fundraiser.

Fundraise for this Campaign

The Team: $6,405 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Hannah Peters

Amount Raised

$6,405

Fundraiser Title

Tracy Leggett

Amount Raised

$0

Donor Comments

Emily Veronie

Emily Veronie

DONATION: $15

Jude is my biggest inspiration ❤️ 2 months ago

Mimi Banks

Mimi Banks

DONATION: $180

Tribute to Marris Ambrose and her amazing support 2 months ago

Kaitlyn Barger

Kaitlyn Barger

DONATION: $25

3 months ago

Beals and Rapp family

Beals and Rapp family

DONATION: $50

4 months ago

The White Family

The White Family

DONATION: $50

We follow your story with such joy and many prayers! God bless <3 4 months ago

Anonymous

ANONYMOUS

DONATION: $25

With much love! 4 months ago

Nicki Ray

Nicki Ray

DONATION: $40

Praying for you Jude!!! You are such an inspiration to so many! 4 months ago

Ashley Honour

Ashley Honour

4 months ago

Chanel Montenegro

Chanel Montenegro

DONATION: $30

Keep on fighting sweet Jude! We’re all rooting for you 💙 4 months ago

Brian Greendahl

Brian Greendahl

DONATION: $25

Much love. 4 months ago

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