Brian Murphy

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Team SAYS:
Dear Brian and Jeanne, Thank…
Dear Brian and Jeanne,
Thank you so much for your generous donation and for supporting my efforts in finding a cure for EB. We are so blessed to have so many amazing people in our lives who care so much about Robbie. We pray that one day he will live this life pain free. God bless!!

BTW, there is a really cool parade in NYC on November 6th- no floats, just a lot of crazy people chasing a Kenyan... you should check it out..LOL love you guys!!

Kath,Rob,Robbie and Allie xoxo
2 years ago
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Brian Murphy
Brian Murphy
Farmingdale, NY United States
Stuff About Me:

Dear Family and Friends,

On November 1, 2015, I'll be running the New York City Marathon in honor of Robert Twible.  Robbie is my cousin Kathleen's son, and he suffers from epidermolyis bullosa (EB), a rare disease that causes severe blistering both internally and externally from the slightest friction, rubbing, or other contact.  Since last year, Robbie has had three surgeries to open his esophagus and clear the blistering.  Walking has become difficult for him, and the everyday things that we take for granted are major ordeals.

Through all the pain, bandaging, doctors visits and surgeries, Robbie somehow maintains an incredibly positive attitute.  He is an inspiration to everyone that meets him.  He's always quick with a smile, and he's a huge fan of Broadway, Justin Timberlake, and Ellen, to name just a few of his interests.  It is this inspiration that will get me through the marathon this fall.

I'm privileged to be running with the EB Research Partnership team.  Kathy and I have been doing our weekend long runs together, and we're up to 14 miles and right on track with our plan.

Please support me in my efforts to find a cure for EB.  Your donation will help continue the research that will hopefully lead to a cure for this horrible disease.




CR Impact Points

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Total Impact Points

Brian Murphy's Fundraisers

2015 NY Marathon Image

2015 NY Marathon

Amount Raised:



113% Raised of$2,500 Goal