Bringing Neuroendocrine Cancer to Light
Organized by: Linda Bourgeois
A routine physical found that I had neuroendocrine cancer. I had never heard of this cancer. Here are the test I had to rule out that I did not have this cancer: Ultrasound of abdomen; CT scan with and without contrast; PET Scan; EUS with Ultrasound; Otrecide 24 hour scans; and 5HIAA which was normal, the anomaly. All the others indicated that I have a 4 cm mid body pancreatic cancer, the tail is active and atrophying. They also found a hiatial hernia which has almost cut my stomach into Two stomachs. The top part is pushed into my chest cavity. My doctors did not know much about either and said there was nothing to do about the hernia. Wrong. Second Opinion always especially if you live in a city where you may be the only patient with this cancer. Not much is none. Now I am preparing to have one surgery to remove: hiatial hernia, tumor, tail of pancreas and spleen. They think they can do this with minimal invasive surgery. I hope so because if they have to open and air hits the cancer, I think I will only live 6 months, at best. With the time I have left, I would like to become a spokesperson for this cancer and see if I can raise money for research. Thank you for any amount to help me to fund travel across the country to educate communities about this little known cancer.