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Debra Saldivar's Fundraiser:

Kleefstra Syndrome :Bringing a CURE to Beautiful Becky !

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Debra Saldivar

THE STORY:

Pamela Peirce wrote -

Becky is 29 years old and has been officially diagnosed with Kleefstra Syndrome 2 1/2 years ago. There are under 300 in the world with this syndrome > which is a deletion in chromosome #9. The syndrome has affected Becky her entire life, and for the most part she presented herself with PDDNOS >>autism ( diagnosed at age 7) I always knew there was more to her, as she presented with several medical issues, which has landed her in the hospital often. She has endured several major surgeries. Becky is the BRAVEST I know........... she is fun and lovable. Becky health is always a concern and we never know what is around the corner for her. Currently she is suffering for collapsed feet and severe bunions > which are making it difficult for her to walk. She suffers from a very low muscle tone, and developmental delays. She has had Brain surgery ( Deep Brain Stimulation) to help with her severe OCD, she has a Harrington rod in the entire length of her back. She suffered, as many with Kleefstra syndrome do a severe regression in her mid teens. She has had a few seizures and many of her peers with the syndrome suffer from a lot of seizures. Treatment is so close, It is hoped that can help Becky and her peers. Please consider donating to this wonderful fund to get that cure in reach so that my Beautiful Becky can benefit from such treatment. Thank you from the bottom of my heart

DONATE

To This Fundraiser

$200

MONEY RAISED
  • Auntie Sue

    $200

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Fundraise for this Campaign

The Team: $405 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Pamela Peirce

Amount Raised

$205

 

14% Raised of$1,500 Goal

Fundraiser Title

Debra Saldivar

Amount Raised

$200

Fundraiser Title

Sue Fisher

Amount Raised

$0

Donor Comments

Auntie Sue

Auntie Sue

DONATION: $200

so lucky to have Becky for a niece 3 years ago