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Bring Nevus to the world

Organized by: Yulianna Yussef

Yulianna's Photo

THE STORY:

Hello everyone! My name is Yulianna and I have CMN on my body.Today i want to tell you about one important subject for me, it concerns to thousands people like me. However, this conversation will be about my particular feelings. As you can see in the photo, my skin is not the same as yours. And it is very noticeable because I'm all strewn with brown spots of various sizes, which are called - #birthmarks . It is not hereditary and occurs with one person per 1million. The most common question I hear is “where did they come from?”. Well, I was born like that. There can be a lot of guesses, assumptions and other things, but nobody knows the true origin ( except the physiological processes in the body, such as the generation of abnormal (excessive substance called " #melanin ", which gives the pigmentation). In those times when I was born doctors didn’t face with such diagnosis at least in Ukraine and gave not favorable prognosis. But my mom has never gave up and didn’t listen to anyone , she was always looking for any information. You even cannot imagine how many people we met and how many treatments we have tried. Only when I turned 7 years old, we found out how it is called and how people can live with this. Moreover, it is possible to do a surgery , such as skingrafting. In my case it could be more than 20 operations. But of course no one gave promises or any guarantees that it will not exacerbate my condition. We decided not to do that cause of personal reasons which I prefer not to point. So why I am writing this? In order to try to convey people once again that I and such people are not "lepers". No need to feel an aversion to us, all the people on Earth have birthmarks (Vetiligo etc.) on theirs body. We just have them in bigger quantities and in different sizes. I can give you one simple example of my life. I love summer and sun which is forbidden for people with moles., as well as many other joys of this time of year. But when the heat comes – it becomes a disaster for me cause it is very difficult morally to put on some open clothes Why? Why do I feel slighted? Because the majority of people are beginning to show with all their appearance that I differ from them. I understand that it attracts people’s` attention , that it is something “another” and can be interesting and considered – we don’t mind. Just don’t show your emotions so obviously on this issue! After all we feel and experience the same way. And I'm madly grateful to my family! My mother is my life! My friends, my close people are my support and reliance . So ,I'm creating this page with a hope to get money for my social campaign, I want people to start accepting us, realizing what CMN is in real life. Also I have a plan to travel to different conference about CMN and to Nevus families and show children that it's no need in hiding and to teach them how to love themselfs. Our illness is only 32 years old and it's nothing for medical discovering. so I hope BBC and doctors will hear about us and start to do something , because lots of children and adults are dying. You can visit my public Facebook page Yulianna Yussef and also I was on TV sharing with this problem . And I want to do more and show to another CMN people that we can live with it like a normal people! Thank you very much! Even the sun has spots .☀️☀️☀️

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Yulianna Yussef

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