For those of you coming to my page who don't know me or my story, I will keep this short, because hopefully most of you on this page are my friends or family :). Instead of going back through years of not feeling right, I'll simply start where things started to take off. Starting in the winter months of 2013, I started to notice that anything I ate or drank would cause a crazy uproar in my stomach (pain, nausea) sometimes to the point where I would find myself throwing up hours later. Come spring, not only was my stomach acting crazy but I started to break out in hives on my neck, chest, and stomach. So now I had these random hive outbreaks, pain, nausea, weakness, and fatigue. Because of this I finally decided to see a doctor. For the next 6 months i had my blood checked once a month because there was a large spike in my eosinophil count (a white blood cell). Over these months I also saw a GI doctor who misdiagnosed me with IBS and said not to worry about my blood count, I was "probably just sick". Two more months went by and my blood count continued to rise (normal eosinophil counts are 0- .2% of your blood count, I was at 56% at this point!). I then was sent to a hematologist/oncologist in which we did more testing because high eosinophil counts typically are caused by an allergy or parasitic infection. Tests continued to come back negative as I got more more frustrated and scared. The bone marrow biopsy was the last test done, I waited two whole weeks for my results because they were so baffled! I ended up being diagnosed with something less than 1% of the country has: depending what doctor is talking it is a myeloproliferative neoplasm with hypereosinophillic syndrome (eosinophilia), OR Eosinophillic leukemia which is much easier to say! My eosinophils slightly destroyed my lungs in the waiting process so i now have two super sexy inhalers. There is no cure for this yet unfortunately, so I am currently on a chemotherapy pill that makes me feel terrible, however some days are better than others. Living with cancer, never something I thought I would say.
So much for short! Ha. Thanks for reading and I hope you can donate! If not at least hit that lovely vote button on this page :) <3
STUPID CANCER wrote -
Young adults, a largely unknown group in the war on cancer, account for 72,000 new diagnoses each year. That's one every eight minutes. Young adults (including long-term survivors of childhood cancer) are an underserved age group by way of their sheer isolation and lack of connection to age-appropriate programs, peers and support resources that restore dignity and connect them to relevant tools to get busy living. Various reasons and circumstances can cause young adults diagnosed with cancer to feel isolated or unsupported. The OMG! Summit helps those young adults to find other people just like them in a weekend of healing, education and community.
The OMG! Cancer Summit is the premier oncology conference and social networking event for the young adult cancer movement. The signature program of Stupid Cancer, the OMG! Cancer Summit, now in its 7th year, has become a pivotal healthcare event, converging several key industry sectors and mobilize thousands of patients, survivor and caregivers around the world to get organized, build community and unite to drive change.
Join our team and support our efforts to ensure that young adult survivors get the chance to attend this event and participate in a life-affirming weekend of support, education, community and hope.
Stupid cancer. Survivors rule.
Here is what participants have said about this event in the past:
“I had the single most memorable time of my life at the OMG! Cancer Summit. Thank you so much for changing my life.”
“There are no words to adequately describe how amazing it is to be in a room filled with hundreds of other people who ‘get it.’”
“The OMG! Summit taught me to keep fighting, be my own advocate and never give up, no matter what the doctor says.”
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