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Stephanie Lawson's Fundraiser:

Brody's 10th birthday gifts.

Stephanie's Photo

BENEFITING: The Marfan Foundation

Stephanie Lawson

THE STORY:

Hi everyone! My amazing son is turning 10 in February. I asked him what he wanted for his birthday and he with out even a second thought said he wanted to raise money for Marfan syndrome. He suggested we do a walk and maybe a 50/50 raffle. He really got into planning, so soon u will see plans for a walk. And maybe we will have other events locally. I will update you all. His goal was $200.00 I said well baby lets do something to make that and maybe more. His eyes got so big. He shared his birth month with Marfan syndrome awareness month. Here is our story so you see why he is so passionate and giving. Brody was born February 8, 2006 10lbs 1 oz. he was a big baby. Over all he appeared healthy no real issues. When he was 17months his brother Rylan came along also a big baby and also appeared healthy. October 2008 we had an emergency. Brody was sick. I took him in he tested negative for strep throat. Yet his symptoms appeared that way. The doc treated him for strep. He just got worst. I kept calling the doc when finally the doc said go to Children's hospital right away. His symptoms were that of Kawasaki's disease. They began testing and treating him. I was scared. Brody's heart indicated his aortic root was larger then normal and his Mitral valve was flat. For several years we danced around Marfans and other connective tissue disorders. But due to the medical system not covering DNA testing we waited. Then my little sister passed away she was 33 . They asked if she had Marfans and we did not have an answer. I brought this information to the doctors attention. He said we need to have Rylan's and my heart checked too. We scheduled but ended up having an emergency for Rylan's eyes and they checked Rylan sooner and rushed to get his DNA testing. And started him on heart medication due to the findings. He was POSITIVE for the the mutation of the FBN1 causing Marfan syndrome. Testing started on the rest of us. We are a family of Marfans. How it has affected us: eyes issues, leg pain, foot pain, migraines, nerve pain, headaches, bone issues, skin, lungs, neuro psych (both boys) and let's not forget our hearts. The connective tissue holds all the body's cells, organs and tissues together. Our family believes in giving back. We are Cub Scout family. We don't let our diagnoses stop us from enjoy our every day. We ask you to help Brody's birthday wish.

DONATE

To This Fundraiser

$2,310

MONEY RAISED
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  • Anonymous

    $200

  • Happy Birthday Brody! From Tommy S.

    $25

  • The Lechner Family

    $10

  • Jessica Sternberg

    $25

  • Steve's Auto Care

    $50

  • Mikaela Ballou

    $50

  • Brave and caring Brody, happy birthday!

    $40

  • Samantha Molitor

     

  • Trina

    $50

  • Vaughn Wressell

    $25

  • Shawna

     

  • Shane "Soundboard" Benner & Megan "Rubix" Roelofs

    $50

  • Linnéa Family

     

  • Real Life Church & Pastor Steve

    $100

  • BOBBI CITRON

    $25

  • In honor of my grandbaby Kierra Raine

    $25

  • Emily and Cynthia Talbot

    $10

  • Barr family

    $50

  • Brittany

    $10

  • The Haigh Family

    $40

  • The Fouts Family

    $20

  • Sean

    $25

  • Ashley London

    $100

  • Here's $10 more to hit $1000 - Mikaela

    $10

  • Jessi Nemens

    $50

  • Pam Morrow

    $25

  • Jody Randall

    $25

  • Jon Fowler

    $100

  • Emi

    $10

  • Josh Smith

    $50

  • Christine Willadsen and family

    $25

  • Amy Foxworth Hansen

    $25

  • Dawn Chaplain

    $25

  • Angels for Elsie

    $25

  • Anonymous

    $20

  • The Nickell family

    $10

  • Anonymous

     

  • Nick and Cara Rozell

    $25

  • Shannon Cole

    $50

  • Linda & Brian Elliott

    $10

  • Kiersten

    $25

  • Kevin & Meg

    $25

  • Dirk Lebsack

    $50

  • Elizabeth

    $15

  • Justin Titcombe

    $50

  • Anonymous

    $25

  • Anonymous

    $25

  • Scott and Linda Shampine

    $50

  • Donovan Wedington

    $50

  • Lyz Kurnitz-Thurlow

    $25

  • Juan

    $100

  • Suzann McWhorter

    $25

  • Bryn Bunich

    $100

  • Keith H

     

  • Mattson Family

    $20

  • Java! Java! Coffee Company

    $200

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1155% Raised of$200 Goal

Fundraise for this Campaign

The Team: $2,310 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Stephanie Lawson

Amount Raised

$2,310

 

1155% Raised of$200 Goal

Fundraiser Title

Rekonize Remo

Amount Raised

$0

Donor Comments

Java! Java! Coffee Company

Java! Java! Coffee Company

DONATION: $200

Great job Brody! 3 years ago

Mattson Family

Mattson Family

DONATION: $20

3 years ago

Keith H

Keith H

3 years ago

Bryn Bunich

Bryn Bunich

DONATION: $100

In honor of my son Joey! 3 years ago

Suzann McWhorter

Suzann McWhorter

DONATION: $25

You're a good kid with a good heart! 3 years ago

Juan

Juan

DONATION: $100

Happy birthday! It's a great birthday present for you and also for the Marfan community. I'm also Marfan and I'll be operated in one month. I'm sure in 10 years there will be improvements in Marfan treatment. 3 years ago

Lyz Kurnitz-Thurlow

Lyz Kurnitz-Thurlow

DONATION: $25

Happy Birthday - What a wonderful wish! 3 years ago

Donovan Wedington

Donovan Wedington

DONATION: $50

3 years ago

Scott and Linda Shampine

Scott and Linda Shampine

DONATION: $50

Happy birthday 3 years ago

Anonymous

ANONYMOUS

DONATION: $25

3 years ago