On Wednesday May 18th, 2016 Brooklynn was finally diagnosed with JDM, here is our story:
A few years ago we noticed that our little Brooklynn (age 2 roughly) was forming what we said were "bumps" on her hand and feet knuckles and tops of her feet. We were concerned so we made an appointment with her Primary Pediatrician through Kaiser. At that point she referred us out to a dermatologist. At that point the Dermatologist took pictures of the bumps and had us come back a few months later to see where things were, at that point the bumps had become bigger, more pronounced and a red/purple color. The Dermatologist decided it would be best to have them biopsied to determine what was going on. After having the biopsy done (poor girl was miserable, she was completely out for the procedure thankfully) we got a diagnoses of Granuloma Anularie. They informed us that within 2 years they would/should be gone or on there way out. Well, 4 months ago about I noticed more bumps forming on her wrists, and elbows. I put a message into her dermatologist and he referred us to OHSU pediatric dermatology who then referred us to Randall's Children's hospital to see a Pediatric Rheumatologist. That's when this all unraveled! He had us to an MRI and tons of blood work. When we saw him after all of that was complete Wednesday May 18th, 2016 we got the full diagnoses of Juvenile Dermamyositis.
On Friday May 20th, 2016 she got her first dose of liquid prednisone and first injection of Methotrexate.
Brooklynn has taken AWESOME to her treatment so far.
Thanks to CureJM Foundation and such amazing supporting family and friends here we are moving along!
Please help us fund raise to find a cure for JM and to support Brooklynn on her Journey!
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