Dear Friends and Family,
As you all know, my mother passed away on July 1, 2012 from a tragically rare disease called Creutzfeldt-Jakob Disease (CJD). Before my mom's diagnosis, I had never heard of CJD before. I'm sure that you are probably saying the same thing.
On June 23rd, I was running a 10K in Boston when I saw a team wearing shirts that said Team Z for CJD on the back. Of the 6,500 runners racing that day, I knew it was no coincidence that this team was in front of me. I started talking with Jenna, who lost her father to CJD a few years ago. She started fundraising for the CJD foundation, and she runs races and hosts events with her friends and family to raise awareness of this rare disease and to help fund research. Jenna's goal is to raise $10,000.00 before September 5th, which would have been her father's 60th birthday.
As many of you know, I have recently begun running road races. I am currently registered for the Rock n' Roll Philadelphia half marathon which is in September (right around Jenna's goal date.)
Before my mother got sick, she had started the program Couch 2 5K with the goal of running a 5K race and ultimately a half marathon. Although I have mentally been running every race for her since last summer, I want to formally run this race in her memory.
Please share this page to help raise awareness of CJD. All money donated will go to the Creutzfeldt-Jakob Disease foundation (http://www.cjdfoundation.org/about-cjd)
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