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Michelle Smith's Fundraiser:

Captian Katey

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BENEFITING: MYTEAM TRIUMPH

Michelle Smith

THE STORY:

Welcome to Captain Katey's fundraising page for myTEAM TRIUMPH -Ainsley's Angels of Eastern Carolina!

A personal message from Captain Katey's mom:
Katey is a very happy, fun loving little girl who has a million dollar smile
that can light up the room. Katey was born at 26 weeks weighing 1lb 12oz.
She spent the first 6 months of her life in the NICU. At 10 months old Katey
was diagnosed with a very rare genetic condition called
Cardio-Facio-Cutaneous Syndrome, there is only 300 known cases world wide.
With this syndrome Katey has developed cardiomyopathy, development delay,
feeding issues, sensory issues, diabetes insipidious, vision problems, mild
hydrocephalus, failure to thrive (which to us she is thriving very well).
Katey is also diagnosed with BPD due to her prematurity at birth. Katey is
classified as a non-verbal and non-mobile child below the 3rd percentile.
With all these obstacles stacked against her Katey has accomplish so much in
her 3 years of life. During the last year Katey has learned over 40 words in
sign language, has started crawling, and verbally saying the words "dada",
"mama", "no", "bye", and "hi". We are very proud of her and all she has
accomplished and we know that this is just the beginning!

We are an athletic ride-along program created for children, teens, adults and veterans who would normally not be able to experience endurance events such as triathlons or road races. Visit our website for more information!

Since we currently do not have any membership fees for our Captains (those we push) or our Angels (those who push), our mission is dependent on your support. Among the things donations will be used for include: purchasing an enclosed equipment trailer; maintaining/purchasing jogger chairs, bike trailers, and boat rafts; purchasing team uniforms; ensuring all Captains never pay for a single event, and continuing to provide for the best events possible for our Captains and their families! We also aim to support local special needs schools, programs, and organizations, while also offering an annual out-of-area trip/race for our special rider athletes.

You might be wondering, who is Ainsley?

Well, our organization's namesake does not talk or walk; she does not play for fun; but she smiles, while out for a run. An inspiration to thousands, she is an amazing little girl with a smile that will light up any room. Shortly after being diagnosed with an extremely rare progressive genetic nerve disorder called Infantile Neuroaxonal Dystrophy (INAD), Ainsley completed the Surfer's Healing Virginia Beach 5K road race. Her first of many running-aided, wind-induced smiles took our family's collective breath away as she received her finisher's medal and became an official Team Hoyt Virginia Beach (THVB) ATHLETE! Inspired by Dick and Rick Hoyt, and the only running team authorized by the Hoyt's to use their name, THVB provided Ainsley's family with a therapeutic means to fight the devastation associated with learning and trying to live with the fact that your child has a terminal illness. The positive energy surrounding the start line, the children smiling from ear to ear, the togetherness of every member preparing to "roll with the wind", the fearlessness of the athletes, the normalcy of the family, and the love we all have for each other is a therapy like no other. In an effort to spread this amazing experience to as many people as possible, Ainsley's Angels aims to see other families experience what the Hoyt's have experienced over 1000 times and what we have experienced over 40 times (so far). As such, we created this chapter of myTEAM Triumph to ensure others can "roll with the wind" and live up to the philosophy of, "Yes You Can."

$50

MONEY RAISED
  • Ames Family

    $10

  • Brandon and Kat Taylor

    $20

  • Jerry and Ann Jordan

    $20

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Donor Comments

Jerry and Ann Jordan

Jerry and Ann Jordan

DONATION: $20

Way to go Katey 4 years ago

Brandon and Kat Taylor

Brandon and Kat Taylor

DONATION: $20

4 years ago

Ames Family

Ames Family

DONATION: $10

Love Ya Guys!!! 4 years ago