BENEFITING: MYTEAM TRIUMPH
Welcome to Captain JoJo's fundraising page for myTEAM TRIUMPH - Ainsley's Angels of Southwest Louisiana!
On December 8, 2012, Captain JoJo earned the title 'HALF MARATHONER'! We know the team he Captains is ready to roll in 2013 and will continue to TRIUMPH.
Joey was born at 32 weeks after trying to come at week 30 during a hurricane. Born jaundice, with a hole in his heart, we took him home 12 days later expecting our newborn to be fine. At 7 months we became concerned with developmental milestone not being reached. A neurologist diagnosed him with pvl/cp and we began treatment through the Shreveport Shriners hospital. Such a constant vibrant smile and tender hearted soul, even with all the treatments and medicine, Joey chooses to overcome and adapt to his life of therapies and regiments to keep his quality of life at its best. He has a wonderful sense of humor, along with a constant intoxicating SMILE!!!
See Captain JoJo in action on KPLC TV's DREW VS YOU at this link.
Since we currently do not have any membership fees for our Captains (those we push) or our Angels (those who push), our mission is dependent on support from sponsors like you. Among the things donations will be used for include: maintaining our enclosed equipment trailer; purchasing and maintaining jogger chairs; bike trailers, and boat rafts; ensuring all Captains never pay for a single event; and ensuring we can continue to provide for the best events possible for our Captains and their families! We also aim to support local special needs schools, programs, and organizations, while also planning an annual out-of-area trip/race for our special rider athletes.
You might be wondering, who is Ainsley?
Well, our organization's namesake does not talk or walk; she does not play for fun; but she smiles, while out for a run. An inspiration to thousands, she is an amazing little girl with a smile that will light up any room. Shortly after being diagnosed with an extremely rare progressive genetic nerve disorder called Infantile Neuroaxonal Dystrophy (INAD), Ainsley completed the Surfer's Healing Virginia Beach 5K road race. Her first of many running-aided, wind-induced smiles took our family's collective breath away as she received her finisher's medal and became an official Team Hoyt Virginia Beach (THVB) ATHLETE! Inspired by Dick and Rick Hoyt, and the only running team authorized by the Hoyt's to use their name, THVB provided Ainsley's family with a therapeutic means to fight the devastation associated with learning and trying to live with the fact that your child has a terminal illness. The positive energy surrounding the start line, the children smiling from ear to ear, the togetherness of every member preparing to "roll with the wind", the fearlessness of the athletes, the normalcy of the family, and the love we all have for each other is a therapy like no other. In an effort to spread this amazing experience to as many people as possible, Ainsley's Angels aims to see other families experience what the Hoyt's have experienced over 1000 times and what we have experienced over 40 times (so far). As such, we created this chapter of myTEAM Triumph to ensure others can "roll with the wind" and live up to the philosophy of, "Yes You Can."