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Carlos pastorino

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Monica SAYS:
Dear family and friends, A…
Dear family and friends,

As you all may know, our son Nicolas is affected by Fragile X Syndrome. For those of you who are not very familiar with Fragile X Syndrome, FXS is the most common cause of inherited intellectual disability and the most common known genetic cause of autism or autism spectrum disorders. It can cause learning and behavioral challenges ranging from mild to severe.

As exciting as Nico’s progress has been, so much more needs to be accomplished. Research for Fragile X is incredibly promising. It is a single gene disorder and science has already identified the exact protein (FMRP-1) that is responsible for the cognitive impairment. With science on the cusp of exciting breakthroughs in Fragile X, we feel compelled to continue this Walk every year until treatments and perhaps even a cure is found. We believe that one-day, thanks to the generous support of our loving family, good friends, and kind individuals, science and medicine will make this possible.

We are back again this year asking for your support on this cause so near and dear to our hearts. We are hosting our third Annual Fragile X Walk with our dear families of Northern Virginia. As a group, we nearly reached our goal of $50,000 last year and are determined to reach it this year. But for that we need your help.

The date is May 17th and the venue the beautiful Burke Lake Park. The distance of the walk will be only one mile but we promise it will be a fun filled morning, with food and entertainment for kids of all ages.

To register follow this link ( and sign up. If you are unable to be at the walk consider making a donation. Every little bit helps to help us reach our ultimate goal: find a cure for Fragile X Syndrome.
3 years ago
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Monica SAYS:
Querido tio Carlos, Mil grac…
Querido tio Carlos,
Mil gracias por tan generosa donacion a nuestra campaña. Nicolas ha hecho un gran progreso y se debe al hecho que nos hemos podido beneficiar de tantos estudios en los que hemos podido participar. El apoyo que nos das se asegura que muchos mas niños se van a beneficiar y que algun dia vamos a encontrar una cura.
Nos encantaria que todos nos pudieran acompañar el dia de la caminata. Necesitamos el apoyo moral y apreciariamos mucho la compañia.
Los esperamos,
Diego, Monica, Santiago y Nicolas
4 years ago
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Carlos pastorino
corona , NY United States
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