Hello Friends and Family,
Our friend Charlotte and her younger sister Gwyneth were diagnosed with a rare and FATAL genetic brain disease, called Batten Disease. It's every parent's worse nightmare and in March of 2015, Kristen and Gordon Gray's girls were diagnosed with Batten CLN6. It’s a neurodegenerative brain disease that takes away their childhood, then takes away the child. Children with this disease loose their ability to walk, talk, feed themselves, breathe on their own and eventually pass away. This all happens very quickly and these children usually do not live past the age of 12. You can watch a short video about their story here: https://vimeo.com/129076730
We're only 5 and 7 years old, but at the least, we can help raise money to find a cure. So on May 21st, we and some of our classmates are going to join a Scooter-a-Thon around our local high school. PLEASE HELP US raise funds to find a cure to help those with Batten Disease!!
Love, Ayden and Kasey LeRoy