Together WE did it!!!
November 07, 2016
The Children's Tumor Foundation's NF Endurance Team is running the 2016 TCS New York City Marathon to end NF through research.
Coming to terms with William's NF diagnosis was a process. It was terrifying to learn how William could potentially be affected by NF.
Today we are blessed that William is an active, thriving, kind hearted, kindergartener. Knowing his well being could change any day makes it a must to find a cure for William and for all those affected by NF. As William's Mom my journey to this end is just beginning
William, I dedicate this run to you. You inspire me.
Neurofibromatosis, or NF, encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves anywhere on or in the body, causing in moderate to severe cases disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities.
NF can appear in any family. NF occurs in 1 in 3000 births; is worldwide in distribution; affects both sexes equally; and has no particular racial, geographic or ethnic distribution.
The Children's Tumor Foundation is a non-profit organization dedicated to Ending NF Through Research, and to improving the health and well-being of individuals and families affected by NF.
Our mission is to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.
There is currently no effective treatments nor a cure, but you can help! Support our team today!
1. You can click on the DONATE button to contribute what you can on behalf of one of NF Endurance team members.
2. You can REGISTER to become join the team yourself and help us raise the much-needed funds and spread the word about this cause.
3. You can volunteer your time during race week and on race day to welcome, support and encourage our runners.
Please email us at email@example.com with any questions!