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Carolyn Ybarra's Fundraiser:

Walk/Run with Northern California Fragile X Association

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Carolyn Ybarra

THE STORY:

July is Fragile X Awarness month. In honor of my son, Jessie, who has fragile X syndrome, a genetically inherited developmental disability, I am raising funds for the National Fragile X Foundation.

NFXF is a hands-on organization. For example, many families, including ours, have contributed to initiatives on topics such as education, adult housing and vocations, and political advocacy. Jessie is one of the actors in the series on adult topics, and I helped with the education project.

Please help us help ourselves! Contribute to this great, responsive organization.

The National Fragile X Foundation (NFXF) supports families by providing resources and advocating for and supporting research. Our family has benefited greatly from their help.

We have attended several local and national conferences of the NFXF. These conferences are a great opportunity for parents to share advice (we have moms' dads' and grandparents' discussions, sessions about education techniques and tips, health, therapy, and genetic research information). The wonderful thing about these conferences is that the families, therapists, educators and researchers are able to talk with one another and benefit from the cross-pollination of ideas.

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