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Carolyn Ryan's Fundraiser:

Carolyn Ann Ryan Photography for EDS Awareness & Research

Carolyn's Photo
Carolyn's Photo
Carolyn's Photo
Carolyn's Photo
Carolyn's Photo
Carolyn's Photo
Carolyn Ryan

THE STORY:

My former coworker, Jenna Holloway, was diagnosed with Ehlers-Danlos Syndrome, which is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels. I connected with the EDS Network C.A.R.E.S. Foundation and created my own fundraiser for this organization. During the months of September and November, I will donate a portion of my sales to the EDS Cares Foundation to assist in research for this rare disease. 


Jenna's Story
Jenna's battle with EDS began three years ago when she developed chronic thoracic outlet syndrome, a painful compression of the nerves and arteries in the shoulders. Even with aggressive physical therapy, her shoulders and neck became loose and unstable. Now, It is not uncommon for her shoulders to pop out of joint twenty or more times a day. Recently, EDS caused Jenna to develop adrenal insufficiency, thyroid problems, and multiple food allergies due to fragile collagen. For the last couple of years, Jenna has fought a daily battle with chronic widespread pain and fatigue. Jenna strives to keep a positive outlook while balancing her health, work, and social life. Her free time is dedicated to researching new ways to treat the manifestations of EDS and hopefully find new clues to a cure.

To read more of Jenna's story on my blog, click here:  http://carolynannryan.com/blog/?p=196


Carolyn Ann Ryan Photography
 

Carolyn Ann Ryan Photography is a New Jersey and New York boutique children’s photographer that specializes in capturing the true sweetness of childhood that can be found in everyday life.  Carolyn feels that she has so many good things in her life, so she loves finding ways to give back others. In addition to working with EDS Network C.A.R.E.S, Carolyn is an Operation Smile photographer and participates in PPA Charities and Operation Smile's Family Portrait Month.


Donations & Contributions
All donations will raise money for EDS CARES Network, a 501(c)3 non-profit organization whose goal is to raise awareness and funds for medical research for patients with EDS.

Donations made through this website (www.crowdrise.com) will go to EDS Cares Network and are 100% tax-deductible. I would appreciate anything you are able to give.

Please visit the site often to view updates our fundraising efforts. For more information on EDS Cares, please visit their website directly at http://www.ehlersdanlosnetwork.org . 

 

DONATE

To This Fundraiser

$415

MONEY RAISED
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  • Carolyn Ann Ryan

     

  • Glenn Wellington

    $25

  • Jim & Margaret Green

    $25

  • Randy Lariar

     

  • Mike & Kim Collison

    $25

  • Dom

    $40

  • Jenna Holloway

    $50

  • Carolyn Ann Ryan

    $100

  • Carolyn Ann Ryan

    $100

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83% Raised of $500 Goal

Fundraise for this Campaign

The Team: $415 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Carolyn Ryan

Amount Raised

$390

 

78% Raised of $500 Goal

Fundraiser Title

Randy Lariar

Amount Raised

$25

Donor Comments

Carolyn Ann Ryan

Carolyn Ann Ryan

DONATION: $100

6 years ago

Carolyn Ann Ryan

Carolyn Ann Ryan

DONATION: $100

Updated donation as a portion of sales. More to come in the next few weeks. 6 years ago

Jenna Holloway

Jenna Holloway

DONATION: $50

6 years ago

Dom

Dom

DONATION: $40

Jenna is Awesome! 6 years ago

Mike & Kim Collison

Mike & Kim Collison

DONATION: $25

6 years ago

Randy Lariar

Randy Lariar

6 years ago

Jim & Margaret Green

Jim & Margaret Green

DONATION: $25

6 years ago

Glenn Wellington

Glenn Wellington

DONATION: $25

6 years ago

Carolyn Ann Ryan

Carolyn Ann Ryan

Starting off this project with a donation to honor my friend, Jenna. 6 years ago