BENEFITING: EHLERS DANLOS SYNDROME NETWORK CARES
My former coworker, Jenna Holloway, was diagnosed with Ehlers-Danlos Syndrome, which is a group of inherited disorders marked by extremely loose joints, hyperelastic skin that bruises easily, and easily damaged blood vessels. I connected with the EDS Network C.A.R.E.S. Foundation and created my own fundraiser for this organization. During the months of September and November, I will donate a portion of my sales to the EDS Cares Foundation to assist in research for this rare disease.
Jenna's battle with EDS began three years ago when she developed chronic thoracic outlet syndrome, a painful compression of the nerves and arteries in the shoulders. Even with aggressive physical therapy, her shoulders and neck became loose and unstable. Now, It is not uncommon for her shoulders to pop out of joint twenty or more times a day. Recently, EDS caused Jenna to develop adrenal insufficiency, thyroid problems, and multiple food allergies due to fragile collagen. For the last couple of years, Jenna has fought a daily battle with chronic widespread pain and fatigue. Jenna strives to keep a positive outlook while balancing her health, work, and social life. Her free time is dedicated to researching new ways to treat the manifestations of EDS and hopefully find new clues to a cure.
To read more of Jenna's story on my blog, click here: http://carolynannryan.com/blog/?p=196
Carolyn Ann Ryan Photography
Carolyn Ann Ryan Photography is a New Jersey and New York boutique children’s photographer that specializes in capturing the true sweetness of childhood that can be found in everyday life. Carolyn feels that she has so many good things in her life, so she loves finding ways to give back others. In addition to working with EDS Network C.A.R.E.S, Carolyn is an Operation Smile photographer and participates in PPA Charities and Operation Smile's Family Portrait Month.
Donations & Contributions
All donations will raise money for EDS CARES Network, a 501(c)3 non-profit organization whose goal is to raise awareness and funds for medical research for patients with EDS.
Donations made through this website (www.crowdrise.com) will go to EDS Cares Network and are 100% tax-deductible. I would appreciate anything you are able to give.
Please visit the site often to view updates our fundraising efforts. For more information on EDS Cares, please visit their website directly at http://www.ehlersdanlosnetwork.org .