Carrie's Crowded Cranium, Part 2
Organized by: Carrie Juraska
Carrie Ann Juraska had brain surgery with an expert Chiari neurosurgeon in Dec 2014. Although the surgery went well, more work needs done. Carrie Ann Juraska had brain surgery with an expert Chiari neurosurgeon in Long Island, NY on Dec 11, 2014. Although that surgery went fairly well, as it has helped relieve the chronic pressure and associated pressure headaches, there are many symptoms that remain and some that have gotten much worse. Unfortunately, more work needs done. At the 6 month, post-op, follow up appointment, the new MRI imaging, in combination with symptoms that everyone had hoped would be resolved but aren't, point to needing Tethered Cord Release surgery (in the lower spine) and additional testing for suspected Cranio-Cervical Instability (in the head/neck region). If his suspicions are correct about the instability, he wants to fuse the base of the skull to the top few neck vertebrae with rods, pins and long screws. If there isn't enough instability to require fusion surgery, he recommended the still unhealed incision site to be reconstructed by a plastic surgeon with extensive experience with Chiari and EDS (Ehlers-Danlos Syndrome, a connective tissue disorder that is preventing a normal healing process). This infamous expert neurosurgeon, Dr. Paolo Bolognese and his plastic surgeon collegue, Dr. Tommaso Addona, are both located in the Long Island, NY area, which is a 3-8 hour drive from the Juraska home, in the rural, Upstate NY town of Smithville Flats. During her brain surgery recovery, Carrie had discovered essential oils and has been trying to help bring in money by studying Aromatherapy and selling oils. New to sales and still suffering from debilitating symptoms, this new passion has not yet been profitable. Their four person family lives solely off of Kevin's disabled veteran's pay. Although disabled himself, Kevin (aka "SuperDuperMan") has taken on the role of caretaker for his wife and their two children, Mackenzie (age 8) and Connor (age 6). As the motion of riding in a vehicle is excrutiating, and still in chronic, debilitating pain, Carrie is more often than not, couch bound and watching the kids' lives go by. She's missed out on countless events with the kids, family and friends. To add to their already difficulties, their budget is already stretched to capacity. Donations will be used for the ongoing medical expenses not covered by insurance, medications, travel, food and lodging for the many more round trips to and from Long Island. Any amount donated will help Carrie live the life of her dreams, being an active participant in both her kids and her own, lives. It would also take the burden off of "SuperDuperMan"and give him his wife and life partner again. If you cannot donate, that's OK too. We need and appreciate your moral support and prayers, sharing our story, as well as needing help with things like babysitting, dog sitting and other gifts from the heart. We hope to have enough money to have the first surgery in mid-July and perhaps the next by end of Augus/beginning of Sept.