Beth Harris via Crowdrise
January 22, 2015
BENEFITING: Chiari & Syringomyelia Foundation
Update: Oct 11, 2014.
You may be aware by the lack of updates that this challenge fell by the wayside. Last year I encounted some personal issues that threw a spanner in the works. While I've been quiet about it (except among some personal friends) I did actually resume the challenge as of July 1st this year. I bought myself a fitness band and started walking every day.
In that time I have lost half of my goal of 10kg by walking daily and making changes to my diet (Mostly it means eating more! Seems backwards I know but when I started logging all my daily food intake I learned that apparently I wasn't eating enough. So now I log everything and it helps me pay attention to when I'm skipping meals etc. It has been frustratingly slow progress taking three and a half months to lose just 5kg but I'm determined to persevere.
Thanks to those of you who have supported my challenge. I still need to be encouraged, some days are very hard, so think about me from time to time and send a note to ask how I'm going or motivate me to just keep going.
We are using the Castle Hiatus to raise money for a good cause.
Like many of you I struggle with motivation when it comes to adopting a more healthy lifestyle but there's no better motivation than raising money for a good cause.
WHAT IS THE CHARITY?
I have chosen to support the Chiari & Syringomyelia Foundation whose goal is to fund research and raise awareness of Chiari Malformation and Syringomyelia. The Chiari & Syringomyelia Foundation, is a 501(c)(3) charity.
This video from Discovery Channel shows the story of one young girl's journey with Chiari Mystery Diagnosis (Discovery Channel)
WHY DID I CHOOSE THIS CHARITY?
I chose this charity because of my own daily battle with Chiari Malformation which began suddenly when I was 22 years old. I literally woke up one day and have never been the same since. It was more than 10 years before I was finally diagnosed. When I developed sudden and unusual vision problems I saw numerous ophthalmologists and they thought I had a brain tumor. Thankfully there was no tumor but one of my neuro ophthalmologists noticed a small herniation in the back part of my brain. This revelation lead me on a journey which eventually took me to New York in 2007 to see the world's leading specialists in Chiari Malformation at the Chiari Institute. They decided surgery was not a good option for me at this point and opted to take a wait and see approach. Since that time I have been determined to make the most of life despite the daily struggle with symptoms that make many things people take for granted difficult. Despite all this I count myself fortunate because I am aware a lot of people with Chairi simply can not function to the level I can. Chiari is often misunderstood and regularly misdiagnosed by doctors who simply don't have enough education or experience with this particular disorder.
WHY DID I CHOSE THE CASTLE HIATUS?
For the past 5 years I have been supporting the TV show Castle by running the website castletv.net. The cast and crew have been a big inspiration to me and I've supported various charitable causes over the years in the name of Castle. From May to September the show is on hiatus providing an ideal time period in which to launch a project like this.
WHAT IS MY GOAL?
Primarily I would like to lose weight and increase my overall health. Obviously carrying around excess wait can cause my existing symptoms to be worse. I'm not motivated because I want to look better, but because adopting a more healthy lifestyle will help reduce the severity of some of my symptoms. With that in mind my goal is through improved diet and moderate exercise to lose 10kg (22lbs).
WHAT WILL BE THE BIGGEST CHALLENGE?
For me the biggest challenge will be finding the line between not doing enough and doing too much. Because of my diagnosis, over-doing it can cause more problems than benefit and as some of you who know me will be aware, I am known to push myself too far at times. Pushing myself too far can lead to consequences that last not just for days but months. At the same time I can't let the fear of pushing myself too far stop me from pushing myself hard enough. It's terribly hard to find a balance that works and it's something that will change on a daily basis.
HOW CAN YOU HELP?
You can help, not just by donating here but by sending me a word of encouragement from time to time over the three months I'm taking on this challenge.
I would also encourage you to set up your own Castle Hiatus challenge. It can be anything from setting up a challenge like mine to simply donating to a charity, or maybe spend some time volunteering for a worthy cause. Be sure to let us know if you take up your own challenge so we can support you too. You may also join our team here on crowdrise to help us raise money for the Chiari Syringomyelia Foundation.