Hi! My name is Cathryn. Thank you for visiting my team’s web page. I hope you will read about me, A-T, and how you can help us raise funds to find a cure.
What is A-T?
Imagine a disease that combines the worst symptoms of muscular dystrophy, cerebral palsy, cystic fibrosis, immune deficiencies, and cancer. Children with A-T are usually confined to wheelchairs by age 10 and often do not survive their teens. Because A-T is a multi-system disease, scientists believe that A-T research will help more prevalent diseases such as Alzheimer’s, Parkinson’s, AIDS, and cancer.
A-T affects every moment of my life. I love to read, but it is very difficult for my eyes to follow words on a page. I listen to audio books and have “read” many classics this way. I also love to make quilts, but my fingers won’t allow me to perform many of the intricate tasks quilting requires. I have a friend who helps me. I design the quilts and pick the fabrics. She does a lot of the fine work and I run the sewing machine. Together we won First Place for a Group Quilt at the San Benito County Fair! I also love to draw and paint, but again, my fingers won’t let me control a paint brush or a pencil the way I’d like. So I use my computer to draw pictures that illustrate books I have written. The process is slow, but I love the final result. I love to bake. I’d love to sculpt. I wish I could dance again. But A-T severely limits or destroys these abilities.
My days are filled with therapies and exercises. In fact, if I did everything I am supposed to—breathing regimens, floor exercises, medications, time in the standing frame—it would take over half of my day. Every day. Truly, living with A-T is like running a marathon that doesn’t seem to have a finish line in sight.
CR Impact Points
Click the VOTE button to give Cathryn 100 CrowdRise Impact Points (CIPs). Vote for the Volunteers and Fundraisers that are answering the call to service, raising money for charity, and making an impact for their causes. Come back and Vote every months. CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.
CR Impact Points
If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Cathryn this month. Come back next month and vote again if you still love Cathryn. Thanks to your vote, Cathryn earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.