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Elizabeth Poplawski's Fundraiser:

CdLS

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Elizabeth Poplawski

THE STORY:

On Wednesday, July 4, we will be participating in the 43rd annual 10K AJC Peachtree Road Race. We would like to use this as an opportunity to raise awareness and fundraise for the Cornelia de Lange Syndrome (CdLS) Foundation. Many of you met Elizabeth’s older brother, Stephen, who has CdLS, at our wedding. Elizabeth and Stephen have a very special bond, and he has significantly influenced her career path in medicine. The CdLS Foundation holds a biennial national conference, which Elizabeth and her mom have volunteered at for many years. The Foundation has been a great source of support for our family over the last 30 years. We will be heading to Chicago at the end of June for the next conference, and would love to present them with a donation at that time.

The CdLS Foundation, Inc. is a non-profit organization that has been supporting families and sponsoring research since 1981. The primary functions of the foundation are to provide support and services to affected families, provide education and information to caregivers, raise awareness through publications and conferences, and help fund medical research related to the syndrome.

CdLS is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges and affects both genders equally. CdLS does not discriminate – it’s seen in all races and ethnic backgrounds. The occurrence is estimated to be 1 in 10,000 live births.

Through a variety of research programs and activities, the CdLS Foundation plays a major role in advancing clinical and basic scientific knowledge about the syndrome.

The Foundations mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope.

Thanks for your support!
Elizabeth and Kevin

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