BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
EVENT DATE: May 07, 2017
I'm currently the Communications Coordinator for the CdLS Foundation--the only family support organization in the U.S. for individuals with Cornelia de Lange syndrome. The syndrome is a rare genetic disorder that exists on a spectrum, and there is no cure. The Foundation exists to ensure early and accurate diagnosis, and to help individuals with CdLS and their families make informed decisions throughout their lives.
I'm so excited to finally be joining Team CdLS, along with my lovely co-worker, Susan, to raise funds and awareness for the CdLS Foundation.
See you in the boros!