April 26, 2017
BENEFITING: Cornelia de Lange Syndrome Foundation, Inc.
ORGANIZER: Cornelia de Lange Syndrome Foundation, Inc.
EVENT DATE: May 07, 2017
On Sunday, May 7, I will join Team CdLS and take on the streets of the 5 Boroughs of New York...by bike! Inspired by individuals with Cornelia de Lange Syndrome (CdLS), Team CdLS members take on the challenge to better the lives of people with the syndrome—many of whom struggle to talk, eat and walk. There is no cure for CdLS, but you can help ensure services and programs for families remain by supporting the CdLS Foundation—the only organization of its kind in the country.
Meet my buddy Hannah (aka "Biggy Smalls"), a young teen with CdLS. I met Hannah 9 years ago and have been a part of her support team ever since. She's a beautiful human being that will melt your heart the minute you meet her. I've been very fortunate to be a part of her growth and development and I cannot tell you how rewarding that is. She's come a long way and continues to move forward even though she faces difficult challenges every day. Her family is her cornerstone and they are very dedicated to Hannah's well being. Hannah is definitely my motivation for doing this 41 mile ride.