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Phyllis Johnson's Fundraiser:

Celebrate With Me! Seventeen Years and Counting!

Phyllis' Photo
Phyllis' Photo
Phyllis' Photo
Phyllis' Photo
Phyllis' Photo
Phyllis' Photo
Phyllis Johnson

THE STORY:

Please give a $15 dollar donation in honor of the lives saved by the IBC Research Foundation. Or make a $17 dollar donation in celebration of my 17 years out from diagnosis. How about $67 dollars to celebrate my reaching old age? Multiples of 15, 17, or 67 are good too! The important thing is that many people give what they can to end IBC. The research into the basic science will help with other diseases too. The more I learn about what happens to make cells become cancer, the more convinced I am that cancer research benefits everyone.  Here's my IBC story:

February 1998. This breast pain can’t be cancer. My December mammogram was fine.

March 1998. This red/purple area must be an infection. It can’t be cancer. I just had another normal mammogram

April 20, 1998. I turn 50 today, and I just found out I have inflammatory breast cancer. What the heck is that? I can’t find much info on it. Average life expectancy 18 months? Can that be right?

May, June, July, August, September, October, November, December, January. Chemo, radical mastectomy, more chemo, radiation. My doctors and I are making treatment decisions with very little information because people with inflammatory breast cancer (IBC) are systematically excluded from clinical trials. My doctors help me find more information. I join an on-line support group. Studies are spotty, but it looks like about 40% of IBC patients survive five years, and my doctors think adding the new chemo drug Taxol will help me survive even longer.

August 1999. The Inflammatory Breast Cancer Research Foundation becomes the first 501(c)(3) charity specifically dedicated to funding research to end IBC. With very low overhead and a wise use of donations, the organization educates women and medical professionals about IBC and funds research grants that specifically address how IBC spreads and kills. In large part because of the IBC Research Foundation, more researchers are now answering the questions about the best treatments for IBC while others are doing the basic science to find the root causes.

August 2014. The IBC Research Foundation turns 15.

April 20, 2015. I turn 67. I celebrate 17 years of life since that terrible diagnosis day. Seventeen years ago I worried that I would not live to attend Sara and Channing’s graduations. I’ve done that, danced at their weddings, and held their precious babies.

 Celebrate life with me by passing it along to others with a donation to IBC Research Foundation!

DONATE

To This Fundraiser

$2,847

MONEY RAISED
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  • Phyllis Johnson

    $67

  • anonymous

    $67

  • Jim, Donato, Carolina and Louisa

    $200

  • PJ Hamel

    $67

  • John and Dianne Gundlach

    $50

  • ken offenther

    $25

  • Kristen Stephens & Catie Kuralt

    $100

  • Jenny Bridgers

    $67

  • The Elvins

    $45

  • Carol McWilliams

    $25

  • Carol Boyd

    $67

  • Anonymous

    $1,000

  • Jackie Taylor

    $50

  • John And Paula Dick

    $67

  • Frances Wood

    $67

  • Ken and Peg Williams

    $17

  • Carl Johnson

    $97

  • Anonymous

     

  • Stephanie White

    $67

  • Patricia Robinson

    $500

  • The Allens

    $100

  • Joe & Debra Woodberry

     

  • Laurie Bottiger

    $67

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425% Raised of $670 Goal

Fundraise for this Campaign

The Team: $2,847 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

Laurie Bottiger

Laurie Bottiger

DONATION: $67

Wow, time flies. You are an inspiration Phyllis. Here's to 67 more!! 2 years ago

Joe & Debra Woodberry

Joe & Debra Woodberry

Celebrating your victory! 2 years ago

The Allens

The Allens

DONATION: $100

So grateful for the time we have been blessed to have. 2 years ago

Patricia Robinson

Patricia Robinson

DONATION: $500

2 years ago

Stephanie White

Stephanie White

DONATION: $67

In celebration of my dear friend, Phyllis! I'm so glad you're here & I'm in awe of what an awesome advocate & educator you are! 2 years ago

Anonymous

ANONYMOUS

Congratulations on 17 years!! Wishing you many, many more!! 2 years ago

Carl Johnson

Carl Johnson

DONATION: $97

67 is mighty fine...77 will come in time...but I predict 97 before you wing your way to Heaven! 2 years ago

Ken and Peg Williams

Ken and Peg Williams

DONATION: $17

Pleased to celebrate Phyllis and to share in the cause! 2 years ago

Frances Wood

Frances Wood

DONATION: $67

What an honor to help you celebrate your 67th birthday, Phyllis! 2 years ago

John And Paula Dick

John And Paula Dick

DONATION: $67

Happy Birthday, Phyllis! 2 years ago