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Celebrating My Presidency & The Future of the National Fragile X Foundation

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jennifer silverton

THE STORY:

 

 

As my two years as President of the National Fragile X Foundation comes to a close, I depart with a bit of sadness, a lot of pride for how far we've come and an enormous amount of excitement for what lies ahead for the Foundation and the entire Fragile X Community.

"Aidan’s Story” and the anecdotes of our journey with Fragile X Syndrome are something you are familiar with which is why I am sharing this message with you. I struggle sending my message in this format but I HAVE had the opportunity to speak with most of you one-on-one in the past and certainly plan to do so, again, in the near future.

I wanted to take this opportunity to thank each of you for the years of listening to me, engaging with Aidan, helping me spread awareness about this disorder and helping to provide a safe and welcoming community where Aidan feels a significant sense of “belonging.” I have had the privilege of being involved with the National Fragile X Foundation since Aidan was diagnosed at age 2, when we immediately benefitted from the meaningful services of this wonderful organization. The Foundation provided us with important information about the disorder, places to turn to for expert, medical help and a place to find local families dealing with the same diagnosis, assuring us that we were not alone. Soon after, we began raising funds and awareness for the NFXF. A few years later, I had the great opportunity to join the board of directors, most recently, spending two years as Vice President and the last two as President. This vantage point has allowed me to watch and be a part of the tremendous growth of the Foundation, witness how it serves it’s many families and help lead the organization into the future. I am particularly proud of the Foundation’s expanded efforts into research, giving all of us in the FX community, increased hope that better treatments and a cure continue to get closer. But I’m also proud that while we wait for a cure, there is “Life” to deal with and the NFXF is the ONLY organization that helps guide families, like mine, through this “special life”. I will forever be appreciative of the role the NFXF has played in my family’s journey. And while my term may end, my work does not and here is where I hope you will continue to help. Please assist me in continuing to spread awareness about FXS. I hope you’ll continue to lend me your ear as “life” with Aidan carries on, down an uncertain path. If you’re especially touched by our story, I would be extremely honored if you’d consider a donation to help celebrate the end of my presidency but really to help me pass this role on to the outstanding leadership that awaits and continue the great work of the NFXF. I have never reached out to my friends and family for fundraising purposes and am hopeful you will consider helping acknowledge this point in my NFXF "career."

Thank you for taking time to read this and for considering how you might be able to help continue the great work of the National Fragile X Foundation.

Jennifer Silverton

President

National Fragile X Foundation

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

DONATE

To This Fundraiser

$5,925

MONEY RAISED
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  • Stacey and Marty Belkin

     

  • Julie and Eric Silberg

    $100

  • Jacquelyn & Jonah Bell

     

  • Larry Krantz

    $100

  • Lisa Grodman

     

  • Linda Sorensen

    $100

  • Craig Silverton

    $5,000

  • Jeff Arlene Josh and Alli

    $100

  • Brenda Finucane

    $50

  • Bonnie & Allen Levine

     

  • Jablonski's

     

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Fundraise for this Campaign

The Team: $5,925 TOTAL RAISED SO FAR

JOIN THE TEAM

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Donor Comments

Jablonski's

Jablonski's

2 years ago

Bonnie & Allen Levine

Bonnie & Allen Levine

2 years ago

Brenda Finucane

Brenda Finucane

DONATION: $50

Beautiful picture, Jenn. Your hard work and commitment to the NFXF have helped the entire fragile X community! 2 years ago

Jeff Arlene Josh and Alli

Jeff Arlene Josh and Alli

DONATION: $100

2 years ago

Craig Silverton

Craig Silverton

DONATION: $5,000

2 years ago

Linda Sorensen

Linda Sorensen

DONATION: $100

Thank you for your dedication Jenn! You have been a tremendous asset to the NFXF and I greatly appreciate your leadership. Your positive can-do attitude combined with a great sense of humor have been spot-on in taking the foundation forward! 2 years ago

Lisa Grodman

Lisa Grodman

In honor of Aidan & the Silverton family. You are an inspiration!! 2 years ago

Larry Krantz

Larry Krantz

DONATION: $100

Tribute to Tyler -- thx for all you do Jenn! 2 years ago

Jacquelyn & Jonah Bell

Jacquelyn & Jonah Bell

In honor & support for Aidan and his family! 2 years ago

Julie and Eric Silberg

Julie and Eric Silberg

DONATION: $100

In Honor of Jenn an Aidan, with love and support 2 years ago