Skip to content
walterstaudenmaier's profile image - click for profile

Walter Staudenmaier's Fundraiser:

Celiac Disease Center at Columbia University NYC 2017

Walter's Photo
Walter Staudenmaier

THE STORY:

 Most of you know how close to my heart Celiac Disease is. My son Ethan was diagnosed with this disease in 2009, when he was 4 years old. It was a life changing event. Initially, I was relieved. We had the answer to what was causing our son so much suffering.

On the surface it seems so easy to manage- just remove Gluten from your diet and everything will be fine. Easy right? Not easy at all. Gluten is everywhere. In almost every food and in every meal - especially "kids" food. The difficulty managing the diet logistically is one piece of it - but the worst part is how socially isolating this disease is, especially for a child. For Ethan and other kids with Celiac Disease every birthday party, holiday, visit to a friend's house, neighbor BBQ, school cafeteria lunch and school lesson that involves food (and trust me way more of the school curriculum than you realize incorporates food) is excluding - unless of course he brings his own food - but let's face it - it's just not the same. With Celiac Disease, life isn't casual and carefree. Every meal and snack has to be thought of and planned and will have to be every single day for Ethan's entire life.Though you can't see this disease with your eyes make no mistake Celiac Disease is a disability. Food is a basic necessity of life. Gluten is in most food either directly or through cross contamination. Celiac Disease is a permanent impairment of one of life's basic needs - eating.Awareness and diagnosis has increased a great deal over the last few years, thanks to the Celiac Disease Center at Columbia University - and we continue to be so grateful.If I had one wish in this world, it would be for Ethan have the freedom that comes with eating based on what looks and smells good and not have to base this decision on what won't make him sick - and for him to  enjoy the casual freedom of eating with his friends without feeling isolated and different.

I hate running, my petite 245 lb frame is not built for endurance, unless you count multiple trips to the fridge, but I am going to run this marathon to support my son and all the others whose lives would be instantly changed if/when a cure is found.If you have made it to the end of this, thank you for your time and if you are going to donate know that you are donating to help a great cause with the added benefit of causing me pain for somewhere in the region of 5 hours come this November - but it will be very much worth it. 

Thank you in advance for your compassion and generosity, Walter  

DONATE

To This Fundraiser

$11,200

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Ira Mark

    $500

  • Offline Donation

    $2,500

  • Craig Friedman

    $500

  • Lisa Agdern

    $1,000

  • Phyllis and Ivan Seidenberg

    $2,000

  • Breyten

    $100

  • The Tainsky Family

     

  • Anonymous

     

  • The Hermans

    $100

  • The Wohlstadters

    $100

  • Daces

     

  • Simon Drake

    $100

  • Anonymous

    $50

  • Anonymous

    $100

  • The Schlangers -- and especially Max!!!

    $500

  • Murray Goldfarb

    $100

  • The Golub Family

    $50

  • Chmielecki Family

    $250

  • Anonymous

    $100

  • Wes

    $100

  • The Panzer Family

    $100

  • Cook Family

    $1,000

  • The Kalish Family

    $100

  • Jim Mui

    $200

  • Rob Dorfman

    $100

  • The Goldfarb Family

    $100

  • The Moskowitz Family

    $100

  • The Shaiken Family

    $200

  • The Diamond Family

    $100

  • The Kelfer Family

    $250

  • Taryn Pine

     

  • The Skala Family

    $200

  • The Gluck Family - NestEdge Realty

    $100

  • Louis El DeBarge

    $100

  • The Stambleck Family

    $50

  • The Haber Family

    $100

  •  
  •  
  •  
 

45% Raised of $25,000 Goal

Fundraise for this Campaign

The Team: $72,545 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Daniel Ziluca

Amount Raised

$22,585

 

90% Raised of $25,000 Goal

Fundraiser Title

Maggie Bound

Amount Raised

$18,593

 

74% Raised of $25,000 Goal

Fundraiser Title

Walter Staudenmaier

Amount Raised

$11,200

 

45% Raised of $25,000 Goal

Fundraiser Title

Julianna LeMieux

Amount Raised

$5,780

Fundraiser Title

Shelby Simon

Amount Raised

$3,890

 

16% Raised of $25,000 Goal

Fundraiser Title

Scott Pierce

Amount Raised

$3,500

 

14% Raised of $25,000 Goal

Fundraiser Title

Joshua Schiffrin

Amount Raised

$3,500

 

14% Raised of $25,000 Goal

Donor Comments

The Haber Family

The Haber Family

DONATION: $100

4 days ago

The Stambleck Family

The Stambleck Family

DONATION: $50

5 days ago

Louis El DeBarge

Louis El DeBarge

DONATION: $100

5 days ago

The Gluck Family - NestEdge Realty

The Gluck Family - NestEdge Realty

DONATION: $100

5 days ago

The Skala Family

The Skala Family

DONATION: $200

5 days ago

Taryn Pine

Taryn Pine

Good luck! Great cause! 5 days ago

The Kelfer Family

The Kelfer Family

DONATION: $250

1 week ago

The Diamond Family

The Diamond Family

DONATION: $100

1 week ago

The Shaiken Family

The Shaiken Family

DONATION: $200

1 week ago

The Moskowitz Family

The Moskowitz Family

DONATION: $100

1 week ago