BENEFITING: CELIAC DISEASE FOUNDATION
ORGANIZER: CELIAC DISEASE FOUNDATION
My journey with celiac disease started in August of 2015. My daughter, Erin, age 10, started waking up with headaches and 3 to 4 hours of consistent vomiting. This started off once a week for about a month. We would go to the doctor, who would say it’s constipation or gas. This continued through out the school year but the episodes spread out more. Towards the end of the school years and into summer she started getting sick more frequently and losing weight. In the summer of 2015, she got down to 50 pounds, had pneumonia which lingered on, strep in her blood and was always run down. Finally, in August of 2016, we had enough and went to the hospital. After several tests, a scope revealed celiac disease. Celiac Disease Foundation has been a significant help to us. I had no idea how much this would effect our lives. Im passionate about being part of celiac disease awareness. Diagnosis rates are too low and if sharing Erin's story can be part of diagnosing even one individual early on, I feel it is a win and that I have made a difference. My daughter suffered for so long, I want to do what I can so others don’t have to.