BENEFITING: National Fragile X Foundation
EVENT: NFXF LET 'EM KNOW 5K 2014
Mileage Tracker: 25
I joined the Central Florida Fragile X is proud to support the National Fragile X Foundation’s “Let ‘Em Know 5K” event with the creation of our own fundraising team! We hope you will join us to raise awareness and money for Fragile X!
Donate! We can’t meet our goals without your donations! $5, $15, $25, $100 – any amount, it all makes a huge difference and puts us closer to meeting our fundraising goal!
What is Fragile X?
Fragile X is a family of fragile x associated disorders:
Fragile X syndrome (FXS) — The most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe.
Fragile X-associated tremor/ataxia syndrome (FXTAS) — An adult onset (over 50) neurological disorder causing tremors and changes to balance, memory, mood and intellect.
Fragile X-associated primary ovarian insufficiency (FXPOI) — A condition that causes irregular menstrual cycles, infertility and premature menopause in females of reproductive age.
Fragile X-associated Disorders can be passed on by carriers of the FMR1 gene mutation who have no apparent signs of an FXD. In some families a number of individuals may be affected, while in other families a diagnosed individual may be the only known family member to exhibit symptoms. Also, in some families, only carriers are identified and there are no apparently affected family members.
What is a Virtual 5K?
Basically, it means you can complete it anywhere, anytime beginning July 1 and ending on July 31, 2014. You can run or walk the 3.1 miles (5K) all at once, over the course of a week or the entire month. This is on the honor system—you do not have to report or verify your miles!
Where can you learn more?
From the National Fragile X Foundation’s Website! www.fragilex.org
We hope you will join us and support our team!