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Team Matthew Haran's Fundraiser:

Fragile X New Jersey Let 'Em Know

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Team Matthew Haran

THE STORY:

Paula Fasciano wrote -

The New Jersey Fragile X Community Support Group is proud to support the National Fragile X Foundation’s “Let ‘Em Know 5K” event with the creation of our own fundraising team! We hope you will join us to raise awareness and money for Fragile X!

Ways you can get involved:
1. Join our team! Click the “Join our team” option and help us reach our fundraising goal!

2. Create a team as part of our (Insert Group Name)!! Help (Insert Group Name) reach more people and raise more awareness by being a part of our team! We’d love to see a team created in the honor of someone you love with Fragile X as part of our efforts!

3. Donate! We can’t meet our goals without your donations! $5, $15, $25, $100 – any amount, it all makes a huge difference and puts us closer to meeting our fundraising goal!

4. Register to participate in the virtual event! For your $25 registration fee (by June 11) you will receive your official Let ‘Em Know Dri-fit race shirt and race bib! (Please note, registration is separate from the donation.)

5. Spread the word!! Share our post with your family and friends through email, Facebook, Twitter and other social media outlets!

What is Fragile X?
Fragile X is a family of fragile x associated disorders:

Fragile X syndrome (FXS) — The most common cause of inherited intellectual disability and the most common known genetic cause of autism. Individuals with FXS can experience developmental delays ranging from mild to severe.

Fragile X-associated tremor/ataxia syndrome (FXTAS) — An adult onset (over 50) neurological disorder causing tremors and changes to balance, memory, mood and intellect.

Fragile X-associated primary ovarian insufficiency (FXPOI) — A condition that causes irregular menstrual cycles, infertility and premature menopause in females of reproductive age.

Fragile X-associated Disorders can be passed on by carriers of the FMR1 gene mutation who have no apparent signs of an FXD. In some families a number of individuals may be affected, while in other families a diagnosed individual may be the only known family member to exhibit symptoms. Also, in some families, only carriers are identified and there are no apparently affected family members.

What is a Virtual 5K?
Basically, it means you can complete it anywhere, anytime beginning July 1 and ending on July 31, 2014. You can run or walk the 3.1 miles (5K) all at once, over the course of a week or the entire month. This is on the honor system—you do not have to report or verify your miles!


Where can you learn more?
From the National Fragile X Foundation’s Website! www.fragilex.org


We hope you will join us and support our team!

$4,420

MONEY RAISED
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  • The Patterson's

     

  • Ed Sutor

     

  • Heidi Nadler

     

  • Mike Scerbo

     

  • Karen Feuer

     

  • The Sorce's

     

  • Catherine Mathis

     

  • Anonymous

     

  • The Nicholson Family

     

  • Erika Lemay

     

  • Bob Malavet

     

  • Eric Swanson

     

  • Rob Bragoli

     

  • Denise Albero

     

  • Michael & Tina Walsh

     

  • hommen family

     

  • Florence & John McCarthy

     

  • Michelle Ferguson

     

  • The OReilly Family

     

  • Mary Herzich

     

  • The Klein Family

     

  • John and Ana Sugden

     

  • Barriera family

     

  • Anonymous

     

  • Neeraj Sahai

     

  • PPE, LLC

     

  • The Kelly Family

     

  • Bulanhagui Family

     

  • Tina Morris

     

  • Seong Chung

     

  • Paul and Yoshiko Sheard

     

  • The Creenans

     

  • The Milano Family

     

  • Adam Schuman

     

  • Dave and Sue Stone

     

  • The Stackhouse Family

     

  • The Lynn Family

     

  • Brent Baker

     

  • France Gingras

     

  • Anonymous

     

  • Steve Bardon

     

  • The Merrill Family

     

  • The Smith-Foley Family

     

  • The Van Berkel Family

     

  • The Jacoby Family

     

  • Patricia Wollersheim-Schaefer

     

  • the Marovich family

     

  • Hallett Family

     

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177% Raised of $2,500 Goal

Fundraise for this Campaign

The Team: $13,415 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Team Matthew Haran

Amount Raised

$4,420

 

177% Raised of $2,500 Goal

Fundraiser Title

Paula Fasciano

Amount Raised

$2,419

 

24% Raised of $10,000 Goal

Fundraiser Title

Cara Capela

Amount Raised

$2,311

Fundraiser Title

Andrew Murphy

Amount Raised

$1,485

Fundraiser Title

Theresa LaRosa

Amount Raised

$1,430

 

72% Raised of $2,000 Goal

Fundraiser Title

stacy madden

Amount Raised

$1,350

Fundraiser Title

Willow Clerici

Amount Raised

$0

Fundraiser Title

Pattie Devlin

Amount Raised

$0

Donor Comments

Hallett Family

Hallett Family

3 years ago

the Marovich family

the Marovich family

3 years ago

Patricia Wollersheim-Schaefer

Patricia Wollersheim-Schaefer

Always happy to support you and the cause!! 3 years ago

The Jacoby Family

The Jacoby Family

In Honor of our sweet nephew/cousin, Matthew Haran. We love you Matt! 3 years ago

The Van Berkel Family

The Van Berkel Family

3 years ago

The Smith-Foley Family

The Smith-Foley Family

3 years ago

The Merrill Family

The Merrill Family

3 years ago

Steve Bardon

Steve Bardon

3 years ago

Anonymous

ANONYMOUS

3 years ago

France Gingras

France Gingras

3 years ago