BENEFITING: Children's Cardiomyopathy Foundation, Inc.
EVENT DATE: Dec 05, 2015
I am organizing a fundraiser for the Children’s Cardiomyopathy Foundation (CCF), a national, non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle. The disease affects 30,000 children, and in the most severe cases, can cause heart failure and death. For example, hypertrophic cardiomyopathy is the most common cause of sudden death in athletes.
CCF is an organization that means a lot to me and my wife Michelle. In 1999 physicians diagnosed me with Hypertrophic Cardiomyopathy, and in February 2003 I had a defibrillator and pacemaker implanted. With my physicians' guidance and support from Michelle and our family, I have been able to remain physically active and healthy.
For the past two years, I have trained for and run in the New York Urbanathlon, which is a ten mile obstacle course race. This year the race is scheduled for December 5, 2015 in Queens, New York. http://www.menshealthurbanathlon.com. I plan on running in the race again this year and wanted to use the occasion to try to help children with cardiomyopathy.
(Originally, the race was scheduled for October 24, 2015. Unfortunately, on October 16, the main sponsor for the Urbanathlon, Men's Health Magazine, announced the they had to change the race date because of the the New York Mets making the NLCS.)
I am very fortunate that I not only have support, but access to some of the best physicians in the country. Unfortunately, too many children and their families do not have the same. Your contribution to CCF will help children get the medical care they deserve and expand the search for a cure.
I know from personal experience that being diagnosed with cardiomyopathy can cause an instant crisis in a family of fear and anxiety that impacts everyone involved. For too many families with children diagnosed with pediatric cardiomyopathy, this fear and anxiety is followed by concern for voluminous medical bills. With your contribution and this fundraising effort, it is my hope that no child or family will experience what my family and I have gone through since my diagnosis.
CCF is dedicated to accelerating the search for a cure. It also works closely with physicians and families to improve the diagnosis, treatment, and quality of life for children affected with this condition. Your donation will help save lives and provide children with cardiomyopathy with the medical care and assistance they need.
With your kindness and donations, we can assist CCF’s efforts to make a difference in children’s lives and fund research to find a cure. I thank you for your generosity.