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Amy Price's Fundraiser:

Research Grant to Bring Gene Therapy to the US for Leukodystrophies

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BENEFITING: Calliope Joy Foundation

ORGANIZER: Suzanne

Amy Price

THE STORY:

Calliope Joy Foundation wrote -

Imagine there is a miraculous gene therapy that could save your child from a degenerative neurological disease? What would you do if this treatment was not available in the US? That is the dilemma facing families diagnosed with leukodystrophy. Promising new treatments proven to save children's lives exist, but doctors in the US don't have access to this technology. It's too late to save our daughter Cal, but we want to help doctors in the US get the funding they need to learn more about these therapies and begin treating children. This $500,000 grant will go to doctors to kickstart gene therapy research here in the US so that kids get a chance to fight this terrible disease. In a decade, hundreds of children's lives will be saved because of the breakthroughs that your gift made possible. - Pat Carr and Maria Kefalas, co-founders The Calliope Joy Foundation, parents to Callie Carr, diagnosed with late-infantile onset metachromatic leukodystrophy in 2012

 

DONATE

To This Fundraiser

$240

MONEY RAISED
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  • Adam J. Seidl

    $25

  • Kerri Stucky

    $30

  • Ben and Elitsa Falade

    $50

  • John Lasko

    $10

  • Beau and Crystal May

     

  • Linda Shirck

    $100

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Fundraise for this Campaign

The Team: $33,827 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Calliope Joy Foundation

Amount Raised

$26,937

 

27% Raised of $100,000 Goal

Fundraiser Title

Maria Kefalas

Amount Raised

$3,950

Fundraiser Title

Susan Pizzica

Amount Raised

$2,000

Fundraiser Title

Suzanne Crane

Amount Raised

$375

 

0% Raised of $100,000 Goal

Fundraiser Title

Amy Price

Amount Raised

$240

Fundraiser Title

Michael Fisher

Amount Raised

$100

Fundraiser Title

Ingrid Saavedra

Amount Raised

$100

Fundraiser Title

Angelo Pagnotti Jr.

Amount Raised

$100

Donor Comments

Linda Shirck

Linda Shirck

DONATION: $100

In memory of Livi and in thanksgiving for Giovanni and Cecilia 10 months ago

Beau and Crystal May

Beau and Crystal May

11 months ago

John Lasko

John Lasko

DONATION: $10

11 months ago

Ben and Elitsa Falade

Ben and Elitsa Falade

DONATION: $50

You are in our prayers 11 months ago

Kerri Stucky

Kerri Stucky

DONATION: $30

In memory of Liviana Price 11 months ago

Adam J. Seidl

Adam J. Seidl

DONATION: $25

11 months ago