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Maria Kefalas' Fundraiser:

Research Grant to Bring Gene Therapy to the US for Leukodystrophies

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BENEFITING: Calliope Joy Foundation

ORGANIZER: Suzanne

Maria Kefalas

THE STORY:

Suzanne Crane wrote -

Calliope Joy Foundation wrote -

Imagine there is a miraculous gene therapy that could save your child from a degenerative neurological disease. What would you do if this treatment was not available in the US? That is the dilemma facing families diagnosed with leukodystrophy. Promising new treatments proven to save children's lives exist, but doctors in the US don't have access to these breakthroughs. It's too late to save our daughter Cal, but we want to help doctors bring pioneering treatments for leukodystrophies to the US.

This $500,000 grant will go to doctors to kickstart research in the United States.

Thank you.

Pat Carr and Maria Kefalas, co-founders The Calliope Joy Foundation, parents to Callie Carr, diagnosed with late-infantile onset metachromatic leukodystrophy in 2012

 

DONATE

To This Fundraiser

$3,950

MONEY RAISED
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  • Anonymous

    $2,500

  • Chipty+Franz Family

    $1,000

  • Bob and Rachel Chastanet

    $250

  • Devon Cordova

    $100

  • Pat & Katrina McGovern

     

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Fundraise for this Campaign

The Team: $33,727 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Calliope Joy Foundation

Amount Raised

$26,837

 

27% Raised of $100,000 Goal

Fundraiser Title

Maria Kefalas

Amount Raised

$3,950

Fundraiser Title

Susan Pizzica

Amount Raised

$2,000

Fundraiser Title

Suzanne Crane

Amount Raised

$375

 

0% Raised of $100,000 Goal

Fundraiser Title

Amy Price

Amount Raised

$240

Fundraiser Title

Michael Fisher

Amount Raised

$100

Fundraiser Title

Ingrid Saavedra

Amount Raised

$100

Fundraiser Title

Angelo Pagnotti Jr.

Amount Raised

$100

Donor Comments

Pat & Katrina McGovern

Pat & Katrina McGovern

In admiration and with love. 2 months ago

Devon Cordova

Devon Cordova

DONATION: $100

Rafaella Cordova 4 months ago

Bob and Rachel Chastanet

Bob and Rachel Chastanet

DONATION: $250

so sorry to miss the gala 5 months ago

Chipty+Franz Family

Chipty+Franz Family

DONATION: $1,000

Big thanks to my friend Maria for showing us how to live with strength, intelligence, and love. 6 months ago

Anonymous

ANONYMOUS

DONATION: $2,500

7 months ago