BENEFITING: The Charcot-Marie-Tooth Association
EVENT DATE: Sep 01, 2011
HOURS PLEDGED: 500
FUNNY NAME......SERIOUS DISEASE!
My mom’s amazing strength & grace, while dealing with the effects of Post Polio syndrome, inspires me to live well as I overcome the challenges caused by Charcot-Marie-Tooth disease (CMT).
Charcot-Marie-Tooth disease is the most commonly inherited peripheral neuropathy, yet most have never heard of this neurological disorder. CMT affects the peripheral nerves which lie outside the brain and spinal chord. As a result, there is profound weakness, loss of muscle tissue and touch sensation in the limbs.
People with CMT loose normal function of their arms, legs, hands and feet. The funny name is from the 3 physicians who first discoverd it; Drs. Charcot, Marie & Tooth.
I'm asking you to donate $1, $5, $10, $50 whatever you are comfortable with. Let's find a treatment for this Serious disorder with the Funny name!
Common Clinical Features:
- Muscles weakness in legs and feet
- Loss of muscle bulk in lower limbs
- Sensory loss in feet
- Foot Drop (inability to lift feet)
- Foot deformities (very high arched feet or flat feet)
- As disease progresses, similar symptoms may be seen in arms and hands
The CMTA is a 501(c)(3) federally recognized charity which provides support to patients and families dealing with Charcot-Marie-Tooth (CMT) neuromuscular disease. The CMTA is devoted to:
- Generating resources to find treatments and a cure for CMT
- Creating awareness about CMT
- Improving the quality of life for those affected by CMT
Find out more here: www.cmtausa.org