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MYTEAM TRIUMPH's Fundraiser:

Chariot for Anthony

MYTEAM TRIUMPH's Photo
MYTEAM TRIUMPH's Photo
MYTEAM TRIUMPH's Photo

BENEFITING: MYTEAM TRIUMPH

THE STORY:

Welcome to the Chariot for Anthony fundraising page, hosted by mTT: Ainsley’s Angels, on behalf of Anthony's family.

 

With your generosity, we aim to raise enough money to purchase a lightweight, customized TEAM HOYT running chair for Anthony! This chariot will allow him to compete in local road races, while being pushed by his Dad.   Trust me, as the father of a very special girl named Ainsley, the that the positive energy surrounding the start line, the togetherness of every member preparing to "roll with the wind", the fearlessness of the athletes, the normalcy of the family, and the love we all have for each other is a therapy like no other. I just know this is going to be a life changing event for this family.

 

A special message from Anthony's Mom:

I want to thank anyone who is taking the time to read Anthony's story. Anthony is so excited about being in a marathon with his Dad. I hope people find it in their heart to make a donation, big or small, it all adds up. For those that don't know Anthony, he is a charming 21 year old young man. He grabs your heart with his smile when you meet him. He loves sports, all sports. He loves watching his younger brother play football, basketball and soccer. I know deep in my heart that he wishes he could be out there with his brother. That really breaks my heart.... So being a participant in a marathon with his dad, will make him feel like he was a part of something sporty :) Here is his story..... He is a twin, the twin I miscarried at 13 weeks and Anthony stuck it out as long as he could. He came early at 28 weeks gestation. He was born during a Monday Night football game Cincinnati Bengals vs Buffalo Bills on October 21, 1991 at 10:37pm Eastern time. He weighed in at 2 lbs 5 1/2 oz and was 14 inches long. He came home January 6, 1992 after already having a surgery to repair a hernia. That was his first surgery, with many more to follow. He was diagnosed early on with Cerebral Palsy and had the early intervention, therapy, surgeries, to help him be independent. It was a uphill battle all the way. I would estimate he has had at the very least 13 surgeries requiring him to go under general anesthesia. He has also had his share of adaptive equipment which for the most part we were blessed to have had insurance cover it. You may think that this goal to purchase this Chariot stroller is expensive, but really it's not. Anything for Anthony is expensive. His power wheelchair cost as much as a car. His 1st baclofen pump cost over $21,000. His back surgery requiring the rods, screws, etc. was $93,000 just for the hardware, his total hospital stay was $160,000. I have all the bills showing these amounts, it's crazy! His stroller is somewhere around $3,000. He had AFO's braces for his feet. Which is basically just plastic used to break the tone in his ankles, those were over $1,000. I think you get the picture. So the cost of this customized chariot stroller is not bad. Then you might be wondering, well why does it have to be customized? If you know Anthony you know he is a tiny, boney little guy. He has little to no trunk control. He can not sit by himself. He doesn't have good head control. He can hold his head for a little while, but then he gets tired and his head falls back. He weighs in between 85 - 90lbs dead weight, meaning when you lift him he doesn't help, not even a little. With all that said, the same reason he has a customized power wheelchair is why he needs a custom chariot stroller.

Times are tough for all of us, so if you can't donate, it's okay, just share our story with all your family and friends. I'm certain we will reach this goal and Kong will start his training with Anthony right away!
 Thank you for taking the time read Anthony's story.We really do appreciate everyone!

YES YOU CAN, donate 10, 20 or 50 dollars right now to ensure Anthony can soon roll with the wind in his face as he experiences the trill of crossing a road race finish line!

 

Click the orange button in the upper right of this page or e-mail ainsleysangels@yahoo.com for a link to make a donation using PayPay and/or for a mailing address should you prefer to donate by check. We will ensure all donations appear on this page as off-line donations.

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Who is Ainsley?

Ainsley does not talk or walk; she does not play for fun; but she smiles, while out for a run. An inspiration to thousands, she is an amazing little girl with a smile that will light up any room. Shortly after being diagnosed with an extremely rare progressive genetic nerve disorder called Infantile Neuroaxonal Dystrophy (INAD), Ainsley completed the Surfer's Healing Virginia Beach 5K road race. Her first of many running-aided, wind-induced smiles took our family's collective breath away as she received her finisher's medal and became an official Team Hoyt Virginia Beach (THVB) ATHLETE! Inspired by Dick and Rick Hoyt, and the only running team authorized by the Hoyt's to use their name, THVB provided Ainsley's family with a therapeutic means to fight the devastation associated with learning and trying to live with the fact that your child has a terminal illness. The positive energy surrounding the start line, the children smiling from ear to ear, the togetherness of every member preparing to "roll with the wind", the fearlessness of the athletes, the normalcy of the family, and the love we all have for each other is a therapy like no other. In an effort to spread this amazing experience to as many people as possible, Ainsley's Angels aims to see other families experience what the Hoyt's have experienced nearly 1100 times and what we have experienced over 40 times (so far). As such, we created a foundation in her honor to ensure others can "roll with the wind" and live up to the philosophy of, "Yes You Can."

Please visit our website or connect with/"LIKE" us on facebook

Another way to help, is to spread the word of our message and efforts:

1. Click here to purchase the children’s book, Born an Angel, written by Ainsley’s 11-year old sister and donate it to a local elementary school library! Proceeds go to the Ainsley's Angels Foundation

2. Follow us on Instagram and Twitter: @ainsleys_angels

3. Like us on Facebook: Born An Angel AASWLA AAEC AAinAustin

4. Visit and share our website

THANK YOU FOR YOUR SUPPORT!

$1,115

MONEY RAISED
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  • Anonymous

     

  • Nashville Food Truck Junkies

    $100

  • Aunt Cheryl & Uncle Oudom

    $100

  • Ketnouvong Family

    $100

  • The Hurley's

    $100

  • Diana Reed

     

  • Ann O. Nimus & Family

     

  • Anonymous

    $15

  • Alex and Amber Jones

    $50

  • Kathy Groves

    $20

  • Steve & Sherri Morrison

    $50

  • Jane Hanson

    $25

  • Laura Gruber

    $25

  • Grandpa Guy & Grandma Pat

    $100

  • Aimee and Bill Goddard

    $50

  • Marissa Brunell

    $30

  • Julie Festa

    $100

  • RC & Walter Dix

    $50

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23% Raised of $4,750 Goal

The Team: $1,115 TOTAL RAISED SO FAR

Fundraiser Title

MYTEAM TRIUMPH

Amount Raised

$1,115

 

23% Raised of $4,750 Goal

Fundraiser Title

Jeff Bair

Amount Raised

$0

Donor Comments

RC & Walter Dix

RC & Walter Dix

DONATION: $50

3 years ago

Julie Festa

Julie Festa

DONATION: $100

3 years ago

Marissa Brunell

Marissa Brunell

DONATION: $30

3 years ago

Aimee and Bill Goddard

Aimee and Bill Goddard

DONATION: $50

Lots of love!! 3 years ago

Grandpa Guy & Grandma Pat

Grandpa Guy & Grandma Pat

DONATION: $100

We'll be there to cheer you on! 4 years ago

Laura Gruber

Laura Gruber

DONATION: $25

Time to run! 4 years ago

Jane Hanson

Jane Hanson

DONATION: $25

4 years ago

Steve & Sherri Morrison

Steve & Sherri Morrison

DONATION: $50

4 years ago

Kathy Groves

Kathy Groves

DONATION: $20

4 years ago

Alex and Amber Jones

Alex and Amber Jones

DONATION: $50

4 years ago