BENEFITING: MYTEAM TRIUMPH
Welcome to the Chariot for Sophia fundraising page, hosted by Ainsley’s Angels.
Thanks to all our loving family and friends, we have met our goal for Sophia's brand new Freedom Push Chair!
Anything further will be used for additional chairs to be gifted to others in our area, as we aim to bring a smiles and encourage them to run with us.
GET TO KNOW SOPHIA
On August 3rd, 2011 my family and I received the heart wrenching diagnosis of Rett Syndrome. Considered the worst of the Autism Spectrum Disorders, I will have a battle on my hands for the rest of my life. I suffer from seizures, digestive issues, cardiac and breathing abnormalities, sleeping disorders, anxiety issues, loss of functional hand use, walking/balance difficulties, and cannot talk. I can however communicate with my eyes, my smile, and my infectious laughter. I have Faith in God, Love, & Hope. You see, in 2007 Dr. Adrian Bird launched a pioneering discovery that Rett Syndrome could be completely reversed in a mouse model and efforts are underway to make this happen for me and all the other Rett Angels.
“There is no medicine like HOPE, no incentive so great,
and no tonic so powerful as expectation of something tomorrow.”
-Orison Swett Marden
On May 19th, 2013 I ran my first 5k with my dad pushing me all the way. I had the honor to run alongside the great Dick Hoyt and his son Rick, and the wonderful team from Team Hoyt Virginia Beach and Ainsley’s Angels. Though I cannot talk, I yelled, laughed, and clapped my hands through the entire race. With a smile from ear to ear, and as I approached the finish line, I saw my beautiful mother, brother, grandfather, and friends cheering me on. The push chair that I borrowed was aquired by Ainsley's Angels for the Hoyt Foundation who in-turn graciously provided it to me. Please help me in obtaining my own chair, so that my dad and I can continue to run for HOPE and educate the world about Rett Syndrome.
YES YOU CAN, donate 10, 20 or 50 dollars right now to ensure Sophia can continue to roll with the wind and experience the trill of crossing a road race finish line!
Click the orange button in the upper right of this page or e-mail firstname.lastname@example.org for a link to make a donation using PayPay and/or for a mailing address should you prefer to donate by check. We will ensure all donations appear on this page as off-line donations.
Another way to help, is to spread the word of our message and efforts:
1. Click here to purchase the children’s book, Born an Angel, written by Ainsley’s 11-year old sister and donate it to a local elementary school library! Proceeds go to the Ainsley's Angels Foundation
2. Follow us on Instagram and Twitter: @ainsleys_angels
Who is Ainsley?
Ainsley does not talk or walk; she does not play for fun; but she smiles, while out for a run. An inspiration to thousands, she is an amazing little girl with a smile that will light up any room. Shortly after being diagnosed with an extremely rare progressive genetic nerve disorder called Infantile Neuroaxonal Dystrophy (INAD), Ainsley completed the Surfer's Healing Virginia Beach 5K road race. Her first of many running-aided, wind-induced smiles took our family's collective breath away as she received her finisher's medal and became an official Team Hoyt Virginia Beach (THVB) ATHLETE! Inspired by Dick and Rick Hoyt, and the only running team authorized by the Hoyt's to use their name, THVB provided Ainsley's family with a therapeutic means to fight the devastation associated with learning and trying to live with the fact that your child has a terminal illness. The positive energy surrounding the start line, the children smiling from ear to ear, the togetherness of every member preparing to "roll with the wind", the fearlessness of the athletes, the normalcy of the family, and the love we all have for each other is a therapy like no other. In an effort to spread this amazing experience to as many people as possible, Ainsley's Angels aims to see other families experience what the Hoyt's have experienced nearly 1100 times and what we have experienced over 40 times (so far). As such, we created this chapter of myTEAM Triumph to ensure others can "roll with the wind" and live up to the philosophy of, "Yes You Can."
THANK YOU FOR YOUR SUPPORT!