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Corry Miller's Fundraiser:

Charlie&Mason;

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Corry's Photo
Corry's Photo
 

Corry Miller via Crowdrise
May 15, 2013

I can't believe it! Wow! http://bit.ly/18KO8pX  See more
Corry Miller

THE STORY:

Fragile X Syndrome is the most commonly inherited cause of intellectual disability. The FMR1 gene on the X chromosome is responsible for the deficiency of the FMRP (Fragile Mental Retardation Protein). Symptoms can include: learning difficulties, autism, severe anxiety, seizures in 20-25% of boys, attention deficit, and hyperactivity. FX affects 1 in 4,000 boys and 1 in 6,000 girls. FX is carried by 1 in 260 women and 1 in 800 men. A woman who carries the gene that causes an X-linked condition has a 50/50 chance of passing it to a child, whether it is a son or daughter. This is because she has two X chromosomes, and she passes one or the other for a son or daughter. A man with the same X-linked gene passes it to all of his daughters and none to his sons. This is because he passes his only X chromosome to his daughters and his Y chromosome to his sons.

Charlie, who is 6 years old and Mason, who is 3 years old had genetic testing which led to the discovery of our Fragile X diagnosis just last September. The range of ability varies from mildly affected to severe. Early intervention is crucial! We have come a long way! While developmental delays may cause the boys to adapt to learning on a different level, we are proud of the fact that they are continuing to learn daily! Behavior and potty training remain difficult. The inability to express themselves seems to be the determining cause of acting out at times. They also get overstimulated which makes going places very challenging. We thank you in advance for your contribution. Research and early intervention really play a role in whether our children and other children with Fragile X can live independent lives.

DONATE

To This Fundraiser

$3,655

MONEY RAISED
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  • The Gordons

    $50

  • The Evans'

    $50

  • sherman/sullivan clan

    $50

  • Vicki Maysack

    $50

  • Anonymous

    $25

  • Anonymous

    $10

  • Jim & Olivia Morris and the Monkeys

    $100

  • Susie & Curt McCabe

    $100

  • Robin Finnell

    $50

  • Nana

    $100

  • Anonymous

    $200

  • Shane and Christa Bowie

    $50

  • The Godoy Family

    $75

  • Danielle and Bill Franco

    $50

  • The Pifer family

    $50

  • Debbie Casey

    $50

  • John Fay

    $100

  • Connie Watt

    $25

  • Boyd Family

    $50

  • Darbys

     

  • John

    $100

  • The Foremans

    $50

  • The McKillip

    $50

  • Willi & Carey Williams

    $100

  • Ed and Stacy Matin

    $90

  • Anonymous

    $50

  • Olga Rangel

    $50

  • Jim & Sandee Miller

    $100

  • Charlie and Donna

     

  • Josefina Quinones

    $10

  • Cheri White

    $25

  • Bob and Ruth Anne

    $100

  • Halpern Family

    $150

  • Jackie and Bill Moler

    $100

  • Fantastic Sams Hair Salon Ashburn VA

    $50

  • Richard and Ronni

    $100

  • The Altman Family

    $50

  • Pam and Jeff Leiter

    $50

  • Lynn & Tom Z

    $70

  • Doug Miller

    $100

  • Theresa and Vince Caputy

    $50

  • Jorge & Joy Rangel

    $50

  • Roger Schwartz

    $30

  • Barb Santucci

    $100

  • Jeff and Jean Mullikin--Fantastic Sams

    $50

  • Patty and Phil

     

  • Doc and Linda Wilhelm

    $200

  • Ruth and Chris Burns

    $25

  • The LaBombard Family

    $50

  • Vinyls by Vogel LLC

    $25

  • Pete & Tish Appignani

    $50

  • Anonymous

    $25

  • The Browns

    $50

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183% Raised of $2,000 Goal

Fundraise for this Campaign

The Team: $3,655 TOTAL RAISED SO FAR

Donor Comments

The Browns

The Browns

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

DONATION: $25

4 years ago

Pete & Tish Appignani

Pete & Tish Appignani

DONATION: $50

4 years ago

Vinyls by Vogel LLC

Vinyls by Vogel LLC

DONATION: $25

4 years ago

The LaBombard Family

The LaBombard Family

DONATION: $50

4 years ago

Ruth and Chris Burns

Ruth and Chris Burns

DONATION: $25

Supporting the Miller Family who are a wonderful example of perseverance and dedication for Fragile X advocacy and love of family. 4 years ago

Doc and Linda Wilhelm

Doc and Linda Wilhelm

DONATION: $200

Team MILLER/. Jeremy, Corry for their boys Charlie and Mason 4 years ago

Patty and Phil

Patty and Phil

4 years ago

Jeff and Jean Mullikin--Fantastic Sams

Jeff and Jean Mullikin--Fantastic Sams

DONATION: $50

4 years ago

Barb Santucci

Barb Santucci

DONATION: $100

4 years ago