Brooke Medosch wrote -
The Charlotte and Gwenyth Gray Foundation was created to fund the urgent medical research necessary to save the lives of Charlotte and Gwenyth Gray and the thousands of other children devastated by this disease. Batten Disease is an incredibly rare and fatal neurodegenerative brain disorder; because this disease is so rare, it has received very little funding. It is up to US (The Gray family and network of friends, and those who are touched by their story) to raise the amount of money needed to slow the progression of this currently fatal disease and help find a cure in time to save these precious girls!
The Colorado friends of the Grays are hiking/climbing Grays Peak on August 29th in support of Charlotte and Gwenyth. Please either join us on the hike and get pledges/donations for your climb, or sponsor us on ours. Every dollar counts and every moment matters.
Additional Information can be found at: CureBatten.org