Organized by: William O'Neill
In 2007 Charmaine was diagnosed with (RCM) Restrictive cardiomyopathy which is a condition where the heart is restricted from stretching and filling with blood properly. This is a genetic disease that took the life of Charmaine’s mother in 1981. While in a car and traveling to New York for a family vacation she passed lying her head in Charmaine’s lap. Again in 2005 Charmaine’s family would suffer another loss to this heart disease when her brother lost his battle and succumbed to the very same disease. Her mother and brother were both 45 years old at the time of their death. It was at that time Charmaine and I went to the doctor for her to be tested and regrettably the results came back positive. Since 2007 we have been very proactive in changing everything about our lifestyle, including walking and exercising more, losing weight, eating healthier and getting involved with the heart association to help get the word out about how important heart health is. Since being diagnosed positive in 2007 Charmaine has been taking many medications to manage her cardiomyopathy with some degree of success. However in October of 2013 her heart started deteriorating more rapidly and medications and doses over the next year were changed in hopes of slowing this down. In September of 2014 it became very clear this was no longer working. Charmaine is now in the National database as eligible for a heart transplant and is on the list waiting for availability.