A thank you from Griffin
June 19, 2016
BENEFITING: St. Jude Children's Research Hospital
The quest for answers started nine months ago when Griffin Cherniss went from being a perfectly healthy little boy to a sick kid who missed 67 days of school and spent 40 nights in the hospital. A self-proclaimed conundrum, Grif had the doctors stumped over what was making him so ill. After extensive testing at medical centers in Charlotte and New York City, the persistence and love of his dedicated neurologist led us to doctors at Duke Children's Center. A brilliant pediatrician who we refer to as a real life (and kind) Dr. House came up with a potential diagnosis of carcinoid cancer. This is an extremely rare cancer, even more so in children. There is only one pediatric carcinoid specialist in the country. Most adult patients take 5-7 years to diagnose, which is why carcinoid is called the zebra cancer. Grif has had three positive urine and blood marker tests, and is now waiting for more results and scans to confirm if this could be the culprit. He is about to begin a three week, twice a day shot regimen that could potentially alleviate his symptoms. The catch-22 is that if the medicine works, it is one more confirmation that he has carcinoid. While the possible cancer diagnosis is terrifying, fear of the unknown has been awful for him, his parents and his brother. To know what he is fighting and how he can beat it should be seen as a step in the right direction. Grif has had endless blood draws, and does not have a great relationship with needles. To make these daily shots less scary, and empower Griffin to find the greater good and with his family on board, I created this crowdrise for people to donate $1 per shot to St. Jude's Children's Hospital. Grif chose this charity because, in his own words, "I want to help kids who know they definitely have cancer, whether I have it or not." $42 will make a difference in the lives of other children fighting disease, while inspiring Griffin to continue his own battle to get back to being a healthy 10 year old boy!
I am personally inspired by the strength and sarcasm of this sweet BRILLIANT boy and the tenacity and unwavering love of his parents to persevere and fight for their son to get answers and make him well again. I am fortunate and blessed to know such an incredible family.