Dan Napers via Crowdrise
May 02, 2013
On May 5 2013, I will be running the Dick's Sporting Goods Pittsburgh Marathon to raise funds and awareness for this amazing organization that I was introduced to after the birth of my son in September of 2011. That organization is CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support. CHERUBS is the largest non-profit organization dedicated to research, global awareness, and support of families affected by Congenital Diaphragmatic Hernia (CDH).
Congenital Diaphragmatic Hernia is a severe birth defect that occurs in 1 of every 2500 births. It occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung development. Half of all babies born with CDH do not survive. The cause of CDH is unknown. CDH is as common an occurrence as Spina Bifida and Cystic Fibrosis, yet there is so little awareness and research being conducted. A baby is born with CDH every 10 minutes, and it is estimated that over a 250,000 babies have died from CDH since the year 2000.
Our little "Cherub" Tate was born in September of 2011, and is one of the blessed Cherubs who has survived CDH. This charity is a great source of information, and a way for parents of survivors, as well as grieving parents to connect with one another.
The 2013 Dick's Sporting Goods Pittsburgh Marathon will be the final marathon in my fundraising 'challenge' of running three marathons in three different states within four weeks. This would qualify for entry into the Marathon Maniacs club, while also notching off three states in my effort to run a marathon in each of the 50 states. The first marathon in this set is the GO! St. Louis Marathon, in Missouri. Following that is the Blue Ridge Marathon in Roanoke, Virginia. This second marathon falls just two weeks after St. Louis, and is called 'America's Toughest Road Marathon'. The fundraising effort will be finished off in Pittsburgh, again at just two weeks after the second marathon in Virginia. This is my most ambitious racing goal yet, but I couldn't be challenging myself to support a greater cause than CHERUBS.
I respectfully ask for your support!
With much appreciation,