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Children & NF1 awareness

Organized by: Amber Neal

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I'm really not to good at explaining or telling my story so please bare with me! My name is Amber Neal I have 2 kids with NF1 it's can cause tumors to grow on the nerve cells my sons name is Nathan his is more severe he has seizes the last one he had ended in a trip to the hospital this time the Drs found a mass on the back of his brain, we have to make a trip to a Genetic specialist that's about 100 miles away or so my daughter Kaylei also has to see a kidney specialist . We don't have a way to get there or phones to keep in touch in case of emergencies. I don't have no one to turn to for help I left there dad years ago when he knocked out my teeth that is something else we try to save for me some teeth but that's the last thing I'm worried about at this time, I guess I'm going to close with that like I said before I'm really not to good at it explaneing myself feel free to contact me and I will answer any questions you have thank u and God bless


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Amber Neal

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