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Arlen Janet's Fundraiser:

Children's Hospital of Pittsburgh of Pittsburgh Foundation

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Arlen Janet

THE STORY:

 As you all know, our daughter Alaina was born with Biliary Atresia nearly 11 years ago.  It is a rare liver disease that caused scarring in her liver.  The cause is unknown and her only cure was a liver transplant.  After 15 months of failing to thrive, feeding tubes, and numerous liver infections, Alaina finally needed a new liver.  Instead of watching her wait possibly years on a transplant waiting list, I went through testing to see if I could be her donor.  Megan & I felt so blessed and grateful that my liver was a perfect match for Alaina. 


After researching many transplant facilities, we knew the only place we wanted Alaina to be was Children's Hospital of Pittsburgh.  They do more pediatric liver transplants than anyone in the world and their success rates are the best. Alaina was only 15 months old at the time of transplant.  It was a 12 hour surgery and I donated 1/3 of my liver to Alaina.   It was the most difficult time of our lives.  For me, it was an honor being the person to give her a new chance at life.  It was truly a miracle to see how her new liver immediately transformed Alaina.  Just one day after transplant, Alaina's skin was not as jaundice and the whites of her eyes were no longer yellow!  Two weeks later, her feeding tube was removed forever.  Alaina had a healthy liver and she was finally thriving! 


Here we are nearly 10 years since transplant.  Alaina will be 11 years old on May 1st. She’s had a tough year dealing with 2 episodes of liver rejection. After high doses of steroids, her liver responded well but the medicine took its toll on her.  Steroids have nasty side effects. Alaina also went through a major surgery last June. All of her abdominal muscles had split open so she had a piece of mesh placed to hold her muscles together. Her entire scar got re-opened and she could not do any physical activities for 4 months. She was so brave and handled the unexpected long recovery like a superhero. We were so proud of her.  She loves to dance, is doing great in school, and is loving life like she always has.  We will forever be grateful to her wonderful team of doctors and nurses at Children's Hospital! 


As for myself, it's been a difficult journey.  Being a liver donor, comes with complications and risks.  I have been through 6 surgeries since transplant from hernias, several obstructions (2 in the last year) and an infection.  I lost most of my stomach muscles through it all and will forever be restricted with certain physical activities.  I have a mesh basically holding my stomach muscles together.  It's been a very challenging time both physically and mentally for me.   However despite all the pain and surgeries, I saved my daughter's life.  I would do it all over again for her or any of my kids! 


This will be my 6th year participating in the Pittsburgh Marathon and I will be running 13.1 miles in the Half Marathon on May 6th. Because of all the generous support from family and friends last year we raised over $11,675 for Alaina's Transplant Research Department!  Over the last 5 years we have raised a total of $46,790 for transplant research!   Words can't express the gratitude and appreciation we have for all of your generosity.   


All of that money last year went towards Dr. Sindhi's transplant research lab to help fund one of his biggest research studies ever.  He is working on finding a cause and cure to Biliary Atresia, the liver disease Alaina was born with.   Over the years the money we donated to Dr. Sindhi's research has help paid for 600 DNA kits used to collect samples from Biliary Atresia kids around the world.  Your donations also went towards a new FDA approved blood test called Pleximmune.   Its the first test of its kind and was created by Dr. Sindhi.  It can determine liver or intestine rejection in transplant kids.   The purpose is to avoid putting kids through invasive biopsies and helps doctors predict rejection.   Children's Hospital in Pittsburgh is the only place in the world that has this test.   So believe me your donations are making a difference in Alaina and other transplant kids!   


It's truly an honor to help this exceptional hospital because they saved our daughter's life and continue to make it better. Together we are helping Alaina & every other child benefit from the spectacular research and care at Children's Hospital of Pittsburgh! 


Sincerely, 

Arlen Janet and Family   


The Foundation is a 501(c)(3) tax-exempt organization, and it is a public charity under sections 509(a)(1) and 170(b)(1)(A)(vi) of the Internal Revenue Service Code.  

$16,100

MONEY RAISED
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  • Mr. and Mrs. Stephen Barnes

    $100

  • Steve & Kim Barnes

    $250

  • The Galos Family

    $100

  • Emily Kelly

    $50

  • Miltenberger Family

    $100

  • Ritu Desai

    $50

  • Atlantic Building Supply

    $250

  • Billy

    $250

  • Scott Cruise

    $250

  • The Janet Family

    $500

  • Jim Gilstrap

    $50

  • The Walker Family

    $100

  • Gavin A. White

    $1,000

  • Tammy Ryan

    $25

  • Freiheit Famliy

    $100

  • The Djeu Family

    $100

  • The Willhide Family

    $150

  • Lauren and Frank White

    $50

  • Kelly

    $100

  • Liz Smith

     

  • Alex and Jenn Wish

    $250

  • Mark Trostle

    $50

  • Lynn Karp

    $10

  • Paul Allen

    $25

  • The Bogar Family

    $50

  • Premier Surfaces

    $500

  • Eunah Jung

    $50

  • Jeff and Ginger Held

    $100

  • Andrew and Darshini

    $50

  • Anonymous

     

  • Mosaic Home Interiors

    $250

  • Ryan & Lindsay Rice

    $500

  • Fox Family

    $50

  • Bill Carter ( Sundecks By T & A Contractors Inc. )

    $25

  • Anonymous

     

  • Chris and Melissa Larson

    $50

  • John Tramonte (Premier)

    $250

  • The Eyewear Gallery

     

  • Prince William Garage Door

    $200

  • The King's Masons, Inc

    $500

  • DNB Backhoe Service, Inc

    $100

  • William H. Matcalfe & Sons, Inc

    $250

  • Michael Janninck

    $300

  • Linda Long

    $500

  • Greg Miller

    $200

  • Patty and Robbie Meehan

    $100

  • Stan & Lisa Settle

    $500

  • HDS Drywall

    $250

  • The Rose Family

    $500

  • The Simmons Family

    $100

  • Rachel & Eric Sapperstein

    $250

  • Vinson Ravenell

    $400

  • Wong Family

    $150

  • The Yeager’s

    $50

  • The Sheridan Family

    $50

  • Rodgers Family

     

  • Courtney

    $50

  • M. B. Posey Enterprise

    $250

  • Robert Armantrout

    $1,000

  • Sroka Family

    $200

  • Mark Diluigi

    $300

  • Robyn Dietter

    $25

  • Johnny Paz

     

  • The Colavecchio Family

    $115

  • Eastlake Family

    $100

  • Janet Family

    $500

  • Mt. Taylor Community Fellowship

    $500

  • Ray & Taube Jenkins

    $100

  • R J Kellogg Electric

    $200

  • Mendez Family

    $250

  • The Tains

    $100

  • The Conway Family

    $200

  • Cem Dogan

    $250

  • MSEG, LLC

    $100

  • Kingston Royce Homes, LLC.

    $500

  • Rodney Root

    $50

  • Geralyn Ward

    $250

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124% Raised of $13,000 Goal

Fundraise for this Campaign

The Team: $93,613 TOTAL RAISED SO FAR

Fundraiser Title

Arlen Janet

Amount Raised

$16,100

 

124% Raised of $13,000 Goal

Fundraiser Title

Sarah Robb

Amount Raised

$5,573

Fundraiser Title

Patrick Nelen

Amount Raised

$2,612

 

653% Raised of $400 Goal

Fundraiser Title

Abby Martin

Amount Raised

$2,170

 

181% Raised of $1,200 Goal

Fundraiser Title

Plamen Lilovski

Amount Raised

$2,164

Fundraiser Title

Shannon Volkar

Amount Raised

$2,140

 

107% Raised of $2,000 Goal

Fundraiser Title

Stef Walker

Amount Raised

$2,110

 

422% Raised of $500 Goal

Fundraiser Title

Christina Lopez

Amount Raised

$1,945

 

389% Raised of $500 Goal

Donor Comments

Geralyn Ward

Geralyn Ward

DONATION: $250

5 months ago

Kingston Royce Homes, LLC.

Kingston Royce Homes, LLC.

DONATION: $500

5 months ago

Rodney Root

Rodney Root

DONATION: $50

5 months ago

MSEG, LLC

MSEG, LLC

DONATION: $100

5 months ago

Cem Dogan

Cem Dogan

DONATION: $250

5 months ago

The Conway Family

The Conway Family

DONATION: $200

5 months ago

The Tains

The Tains

DONATION: $100

5 months ago

Mendez Family

Mendez Family

DONATION: $250

5 months ago

R J Kellogg Electric

R J Kellogg Electric

DONATION: $200

5 months ago

Ray & Taube Jenkins

Ray & Taube Jenkins

DONATION: $100

Honoring Arlen and Alaina, and the family, & transplant team 5 months ago