Skip to content
%1$s Profile Image

Chordoma Foundation

Our mission is to improve the lives of those affected by chordoma and lead the search for a cure. Tax ID 20-8423943


Chordoma is rare, truly a one in a million diagnosis. 

The Chordoma Foundation is a nonprofit organization working to improve the lives of chordoma patients by accelerating research to develop effective treatments for chordoma, and by providing information and support to help patients get the best care possible.

To accelerate the search for a cure, we initiate and fund high-impact research, facilitate information exchange and collaboration among researchers, and provide scientific resources needed to study chordoma. 

To help patients get the best care possible, we provide information about the latest treatment options, refer patients to experienced doctors, and match patients with trained peer-support mentors.

We serve patients in the US and internationally.