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Chris Kvam's Fundraiser:

Chris's CF Marathon

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Chris' Photo
Chris Kvam

THE STORY:

I have registered, and am training for the 2016 NYC Marathon! This is my second time running the NYC marathon, and I'm back for more! After successfully completing the race in 2013, I wasn't sure I would want to do another marathon, but three years later, I find myself as able as ever, and ready to take on the challenge once again. As running great Steve Prefontaine said, "to do less than your best is to sacrifice the gift." I am acutely aware of how fortunate I am to have reached my mid 30's with the ability to run, and do not want to let the chance to run another NYC marathon pass me by. I am also running to demonstrate to young people and families affected by new diagnoses of Cystic Fibrosis how much is possible and how full life can be for people with CF. This year, I'm raising money for Coach-ed Inc., a non-profit dedicated to supporting people with CF live life to the fullest through targeted programming, including athletic sponsorship, scholarship, mentoring, adventure activities, and fundraising efforts, Coach-Ed emphasizes healthy, active lifestyles for those living with CF. I share their goal of increasing social awareness of CF and the benefits of exercise and teamwork as part of a responsible approach to treatment management, because I know how important exercise and positive goal-setting have been in my journey through life with CF. For me, exercise is not more treatment. It's my break from CF, and a big part of what reinforces my adherence to care. The fact that it's also excellent for my lung health is an added perk. Learn more about Coach-Ed here : http://www.coach-ed.org/ My fundraising goal is $2,500. This is a significant challenge, and I hope that you will take the opportunity to take part in my journey by donating to my efforts. Thank you so much for any donation! I've written a brief Bio about myself, and my approach to living with CF, and how training for the marathon fits into my personal CF story: My name is Chris. I am 35 years old, and have Cystic Fibrosis. I am also an avid runner, cyclist, attorney, and husband. I have made exercise a keystone in my CF care, and strive to live fully by setting healthy goals that maximize my potential in many areas of my life. I have been married for 8 years, I attended college, graduate school, and law school, and work full time. I ran competitively in high school and college, and continue to challenge myself and push my limits athletically. I live with CF by setting short, medium, and long-term goals, the achievement of which necessitates adhering to my treatment regimen. Success requires integrating my CF care into my days. There is no “on” or “off” button. I have tried very hard to create a healthy lifestyle where my CF care does not conflict with my busy lifestyle, but rather reinforces and enables it. I make conscious decisions about what things I want to dedicate my time to, and I try very hard to achieve them. I could not accomplish my goals without adhering to my treatment regimen, and without prioritizing my CF care. As long as I am truly committed, and have figured out what my goals are, there are no opportunity costs to doing my treatments, as failure to maintain my health can only lead to failure in all other facets of my life. This doesn’t mean adherence is easy, it means adherence is worth it. I was diagnosed with CF in 1984, before today’s CF specific treatments were available. Having few treatment options, my parents were told to treat me like a normal kid. Following this advice, I was enrolled in tee ball, soccer, swimming, ice skating, and learned how to ski. As CF treatments became available, they were incorporated into my busy days. In tenth grade I tried out for, and didn’t make, my high school’s soccer team (not because of CF, but because I lack requisite skills). Not wanting to do nothing, I joined the cross-country team, which, fortunately, had a no cut policy. I was the second slowest kid on the team, but stuck with it. I sought to run personal bests every week, and by my senior year, had improved to the point where running at the collegiate level was realistic. Today, my athletic goals aren’t centered on racing, but rather choosing difficult endurance events that require a high level of fitness to complete. I treat myself like an athlete. When I look in the mirror, I don’t see a sick person. I see someone who has run a 55 minute 15k, cycled 900 miles through the Canadian Rockies, summited the Tourmalet and Mt. Washington on a bike, run a marathon, and finished a half-ironman. I’m an athlete. Athletes train, incorporate weight lifting and aerobic workouts, eat carefully balanced diets, get adequate sleep, and take care of themselves. For me, that also happens to mean inhaling 2-3 hours of nebs everyday, performing airway clearance, and taking my other medications. I am thankful that I have had, and continue to have the opportunity to live my life striving to make the most out of my talents and abilities. These are not my own. I know how lucky I am, and how unfair the genetic dice of CF are across our population. I know I would be dead without the medical advances of the last 20 years that have allowed me the chance to maintain my lung function. I would be lost without the support and understanding of my wife, Christine. My family and friends motivate and encourage me to strive in all things. I am well aware of the realities of CF. The day may come when I can no longer work, run, or ride my bike. If that day comes, I will be most proud of the fact that I used my abilities while I had them, and I will not mourn for missed opportunities or regret time wasted. In the mean time, I continue to focus on what I’m doing today and tomorrow, not what I did yesterday.

DONATE

To This Fundraiser

$2,065

MONEY RAISED
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  • Onno

    $100

  • Jim G

    $25

  • Mike McNelis

    $50

  • DDYTDY

     

  • Ankita Deshpande

    $25

  • Anonymous

    $25

  • Kori

    $25

  • Peter LaDolce

    $25

  • Susan

    $25

  • Carrie Bartholomew

    $100

  • Sabrina Walker

    $20

  • Anonymous

    $50

  • Kevin

    $25

  • Gerry and Stephanie Raymonda

    $25

  • Nik and Nate

    $50

  • John Ghidiu

    $10

  • Matt & Mertie Garnsey

    $25

  • John and Marilyn

     

  • Marey and Joe

     

  • Nate and Leah Merritt-Mervine

    $25

  • Jim Reed

    $50

  • John D'Argenio

    $100

  • Len Putnick

    $50

  • Paul & Sue Murray

     

  • Beth Nowak

     

  • The O'Connor Family

    $25

  • Andrew Wall

    $50

  • Jim

    $25

  • Nancy and Bruce

    $50

  • John Nash

    $50

  • McKenna's

    $25

  • Alexandra Quittner

    $25

  • Greg Sawicki and Tim Matthews

    $50

  • Steve Robins & Carol Capece

    $200

  • Shanna Shulman & Mark Barer

    $100

  • David Kvam

    $250

  • Cindy F

    $100

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83% Raised of $2,500 Goal

Fundraise for this Campaign

The Team: $2,065 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Chris Kvam

Amount Raised

$2,015

 

81% Raised of $2,500 Goal

Fundraiser Title

John Nash

Amount Raised

$50

Donor Comments

Cindy F

Cindy F

DONATION: $100

9 months ago

David Kvam

David Kvam

DONATION: $250

9 months ago

Shanna Shulman & Mark Barer

Shanna Shulman & Mark Barer

DONATION: $100

Run, Chris, run! 9 months ago

Steve Robins & Carol Capece

Steve Robins & Carol Capece

DONATION: $200

10 months ago

Greg Sawicki and Tim Matthews

Greg Sawicki and Tim Matthews

DONATION: $50

10 months ago

Alexandra Quittner

Alexandra Quittner

DONATION: $25

10 months ago

McKenna's

McKenna's

DONATION: $25

For coach ed 10 months ago

John Nash

John Nash

DONATION: $50

In honor of Chris Kvam! 10 months ago

Nancy and Bruce

Nancy and Bruce

DONATION: $50

10 months ago

Jim

Jim

DONATION: $25

You're the man, Chris! 10 months ago