BENEFITING: HANNAHS HOPE FOR GIANT AXONAL NEUROPATHY INC
EVENT DATE: Dec 04, 2011
My cousin, Chrissy, was recently diagnosed with Giant Axonal Neuropathy. Giant Axonal Neuropathy (GAN) is a rare genetic disorder that slowly takes away one's ability to walk, use one's hands, speak, swallow and is terminal.
I am requesting donations for Hannah's Hope Fund, a family driven 501C3 Public Charity, dedicated to funding research for a treatment and/or a cure for this horrible disorder. Our international team of scientists is working on a novel gene delivery approach that, if successful, can be applied to many closely related neurological genetic disorders like SMA and CMT, two other ravaging disorders that lack treatment options.
Our scientific team is led by Dr. Steven Gray, in the Samulski lab at UNC at Chapel Hill's Gene Therapy Center. We are on target to begin a phase 1 clinical trial in 12-18 months. Please join our mission and help us save these precious lives.