Dear Family & Friends,
A family in our community has daughters that have been diagnosed with Batten CNL6, a rare neurodegenerative brain disease that is fatal. Children with this disease lose their ability to walk, talk, feed themselves, breathe on their own and eventually pass away. The disease progresses rapidly and children usually do not live past the age of 12. The Gray's daughter Charlotte is already showing signs and in the last few months, walking and talking has become very difficult for her. Please watch a short video about their story and struggle by clicking on this link: https://vimeo.com/129076730
Kristen and Gordon Gray have spent this past year tirelessly fundraising and have put together a medical research team that is working on a treatment which can potentially save their daughters. Liliana's preschool class is teaming up to raise funds to help their cause.
Liliana will be participating in a scooter-thon to help raise money for Batten disease. You can join our family and sponsor Liliana through our fundraising site. The money raised will be used for immediate treatment on both Charlotte and Gwenyth and every donation, big or small, will help.
With your help, we can make a huge difference to help save Charlotte and Gwenyth.
Thank you in advance for your help and support.
The Hires Family