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Rhein Rhett's Runners Team Holton's Fundraiser:

NE Kansas Xpress, Let 'em Know

Rhein  Rhett's Runners' Photo
Rhein Rhett's Runners Team Holton

THE STORY:

Our mission:

To raise awareness about Fragile X! We need your help to “Let ’Em Know” and make that happen!

 Fragile X Syndrome is a genetic syndrome that is the most widespread, inherited single-gene cause of mental impairment among boys. It results in a broad spectrum of intellectual disabilities as well as behavioral challenges, which can include ADD, ADHD, autism and autistic behaviors, social anxiety, hand-biting and/or flapping, poor eye contact, sensory disorders and increased risk for aggression. Intellectual disabilities in FXS  range from moderate learning disabilities to more severe intellectual disabilities. A definitive diagnosis of fragile X syndrome is made through genetic testing to determine the number of CGG repeats. Testing for pre-mutation carriers can also be carried out to allow for genetic counseling. More than 1 million individuals in the U.S. have, or are at risk of developing a Fragile X Associated disorder.

There are currently no drug treatments that show benefits specifically for fragile X syndrome, however, there are studies and research for such a drug. Until one is found, medications are commonly used to treat symptoms of attention deficit and hyperactivity, anxiety, and aggression. Supportive management is important in optimizing functioning in individuals with fragile X syndrome. Supportive management may involve speech therapy, occupational therapy, and individualized educational and behavioral programs.

Did we mention… we have prizes?!?! 

We have two Grand Prizes* this year: one for the most money raised and one for the greatest number of donations. Each winner will receive one free individual conference registration and two-night hotel expenses (room and tax) to the 14th International Fragile X Conference in Garden Grove, California (July 2014)!!  (Winners not attending the conference will receive a $250 Amazon Gift Card instead.) Each individual personal fundraising page under the NFXF “Let ’Em Know” event on Crowdrise from now through July 31 will automatically be eligible to win.


Want more great news? Your fundraising efforts will be doubled!! 

Thanks to a very generous one-time challenge opportunity by two very special donors, Al and Melissa Blount, every dollar you raise during the NFXF Let ’Em Know 5K event for National Fragile X Awareness month will be matched dollar for dollar!!* So for every $100 you raise, the NFXF will receive a matching $100. (And you don’t even have to double how much you run or walk!)  How easy and awesome is that?!?!

 

All donations to your personal fundraising page benefiting the NFXF on the Crowdrise are tax-deductible!

 

$2,868

MONEY RAISED
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  • Trenton & Cassie Hillegeist

    $25

  • Luis

    $15

  • Johnathan, Kristel, Mickenzie, Breckon Schlodder

    $25

  • Karen Pruitt

    $30

  • Colter & Kinleigh Rhodd

    $10

  • Colter and Kinleigh Rhodd

    $10

  • Logan & Shauna

    $15

  • Mitch

    $10

  • Mom

    $25

  • Harry and Kelly Staab

    $25

  • Alltech Communications

    $50

  • Anonymous

    $50

  • DL Smith Electric

    $280

  • Janice Griffiths

    $20

  • Friends from Jersey. Don't ask where the money's from, you don't want to kn

    $25

  • Pamela Schlodder

    $50

  • Pamela Schlodder

    $50

  • kelvin rue

    $50

  • Edward and Nichole Rostetter

    $25

  • Anonymous

    $10

  • Bob & Darlene Mai

    $50

  • Barb Fencl

    $20

  • Sheryl Murphy

    $30

  • Sue Townsend

    $20

  • Ja. Co. Co-Workers

    $0

  • Shari Monaghan

    $0

  • Don and Judy Swisher

    $25

  • Jim & Marilyn DeWees

    $100

  • Shelly Riedley

    $25

  • Trever & Laura HIllegeist

    $30

  • Harold Rue

    $40

  • Mike & Patty Murphy

    $50

  • Gary & Janine Sawyer

    $50

  • Holton Country Mart

    $50

  • Gary & Alta Morris

    $10

  • Gary & Alta Morris

    $10

  • Alan & Connie Schlodder

    $20

  • Betty Moser

    $25

  • Drake Ewing

    $10

  • Anonymous

    $45

  • Sally Alley

    $50

  • Ja. County Co-Workers

    $43

  • Aaron, Kendra, Conner, Kennadi and Cade Norris

    $25

  • The McInteers

     

  • Patron of expressions

    $15

  • Patrons of Ginger Snips

    $24

  • Cherise, Kensie, and Bri Miller

    $25

  • Brenda

    $500

  • Troy and Amber Howard

    $50

  • Tim and Tanya Ahlgren

    $25

  • Steph and Tim Gall

    $10

  • Dee Barrow

    $20

  • Natalie Clark

    $51

  • Natalie Clark

    $60

  • Ja. County Co-Workers

    $90

  • Judd & Pat Toale

    $40

  • Linda Clements

    $20

  • Stormont Vail Pediatrics

    $100

  • Mark & Cindy Gromelles

    $25

  • Kyle & Crystal Schlodder & family

    $25

  • Tim Schlodder

    $100

  • Tim Schlodder

    $100

  • James Schlodder

    $10

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115% Raised of $2,500 Goal

Fundraise for this Campaign

The Team: $2,868 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Nancy Schlodder

Amount Raised

$693

 

139% Raised of $500 Goal

Fundraiser Title

Jason Murphy

Amount Raised

$690

 

690% Raised of $100 Goal

Fundraiser Title

James Schlodder

Amount Raised

$370

 

93% Raised of $400 Goal

Fundraiser Title

Rhett Murphy

Amount Raised

$300

 

300% Raised of $100 Goal

Fundraiser Title

Rhein Murphy

Amount Raised

$300

 

300% Raised of $100 Goal

Fundraiser Title

Melissa Norris

Amount Raised

$210

Fundraiser Title

Tim Schlodder

Amount Raised

$160

 

160% Raised of $100 Goal

Fundraiser Title

Rhein Rhett's Runners Team Holton

Amount Raised

$145

 

6% Raised of $2,500 Goal

Donor Comments

James Schlodder

James Schlodder

DONATION: $10

4 years ago

Tim Schlodder

Tim Schlodder

DONATION: $100

4 years ago

Tim Schlodder

Tim Schlodder

DONATION: $100

4 years ago

Kyle & Crystal Schlodder & family

Kyle & Crystal Schlodder & family

DONATION: $25

4 years ago

Mark & Cindy Gromelles

Mark & Cindy Gromelles

DONATION: $25

Thank you Mark and Cindy for your donation 4 years ago

Stormont Vail Pediatrics

Stormont Vail Pediatrics

DONATION: $100

4 years ago

Linda Clements

Linda Clements

DONATION: $20

4 years ago

Judd & Pat Toale

Judd & Pat Toale

DONATION: $40

4 years ago

Ja. County Co-Workers

Ja. County Co-Workers

DONATION: $90

4 years ago

Natalie Clark

Natalie Clark

DONATION: $60

4 years ago