Rhein Rhett's Runners Team Holton
We are a group of people that love two boys named Rhein and Rhett Murphy, who happen to be affected by Fragile X Syndrome. Fragile X affects our lives in a variety of ways. Rhein & Rhett want nothing more than to "fit in" and have friends. We strive to make life as "normal" as possible for them. The boys have an amazing support system that has become like a "family" to us, heck some of them are family!!! Early in our diagnosis I said "If 1 out of every 250 women is a carrier of Fragile X, then AT LEAST 1 out of every 250 women should KNOW about it." we still believe that, people can't understand something they have never even heard of. We are just one of many families who are affected by Fragile X, and I would like to not hear "Fragile What?" everytime I mention it! Help us "Let 'em know" by donating to someone on our team!
CR Impact Points
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CR Impact Points
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