BENEFITING: Epilepsy Foundation
EVENT DATE: Nov 21, 2015
Maybe you were really hoping for that awesome He-Man Castle Grayskull for your birthday when you were younger, or the latest My Little Pony gear or a Pound Puppy. Maybe you even wanted a real puppy. All I know is that when I was making a list for my 30th birthday (which, btw, didn't include any of those things but maybe it should have), I certainly didn't put epilepsy on it. Sometimes surprises are ok, but the surprise of developing seizures soon after I turned 30 was not the most awesome one I've ever had. I would have preferred that He-Man castle.
Anyway, apparently you can whack your head one too many times and then develop seizures. Who knew?
It's been a little more than 5 years since I was diagnosed with epilepsy and it hasn't been the most fun, truthfully. I'd enjoyed the privilege of a relatively healthy and independent life. But there have been periods of being hospitalized, periods where meds didn't work or had too many side effects to tolerate. There have been far more question marks than answers. I'm in a decent place now, but it's always a lot of work to stay there and there's not a day that goes by where I have the luxury of not thinking about epilepsy.
I made this questionable choice to run this 8K (have I mentioned that I don't really like to run? For the record, I don't) as a part of Athletes vs. Epilepsy, a nationwide program to raise awareness, build participation and help fund the mission of the Epilepsy Foundation while participating in a variety of sportsy endeavors.
The mission of the Epilepsy Foundation is to stop seizures and SUDEP [Sudden Unexpected Death in Epilepsy], find a cure and overcome the challenges created by epilepsy through efforts including education, advocacy and research to accelerate ideas into therapies.
So basically I'm gonna haul my ass through an 8K because epilepsy is a bummer. It's taken all kinds of support to help me through the past 5 years, and I'm grateful that I've had so much support. But unless my seizures spontaneously stop (anything is possible), I'm looking at many more years of meds and sometimes just not feeling like myself or being able to do what I want to do. I'm all for embracing the reality, but sometimes, as they say, reality bites.
Funds raised are going to support the Epilepsy Foundation.
Thanks so much for your donation! If you can't donate, please throw up some major woo woo to the universe because those 5 miles are kinda gonna suck. Please meet me at the end with snacks and a cocktail.
For more information visit epilepsy.com/athletesvsepilepsy.