BENEFITING: SOFIA SEES HOPE INC
In 2013, with our Clammin’ for Sight clambake, we helped to raise amost $50,000 for the Foundation for Retinal Research. This was enough to kick off the first year of research for gene research (IQCB1/NPHP5) to help find a cure for Sofia's form of blindness.. Knowing that they couldn’t stop there, in January of 2014, Sofia’s family decided to found its own 501c3 organization, “Sofia Sees Hope”.
Their goal is to continue to fund the development of cures for blindness and to make vision a reality for not only Sofia, but for other children, adults and families that are impacted by Leber's Congenital Amaurosis (LCA) and other forms of inherited retinal disease.
The Mission of Sofia Sees Hope is to transform the lives of those affected with blindness from inherited retinal disease by generating awareness and funding diagnosis, treatments and cures. Sofia Sees Hope is working to accomplish this mission in three ways:
• Funding research & treatments
• Enabling access to research and medical opportunities
• Driving awareness of inherited retinal disease
Please join us for a clambake for a cause!