BENEFITING: FIBROMUSCULAR DYSPLASIA SOCIETY OF AMERICA INC
EVENT DATE: May 21, 2017
Fibromuscular dysplasia also called FMD was first diagnosed in 1938 and there is still no known cause or cure for the disease. 90% of patients are women. FMD causes one or more arteries to form abnormally creating areas of beading, narrowing or stenosis which can then lead to a decrease in blood flow to the organ supplied. Signs and symptoms includes: headache, high blood pressure, swooshing noise in the ear, dizziness, stroke, aneurysms and dissection (tear) of an artery. In rare cases FMD can lead to renal failure and death.
FMD made Page 1 of the Wall Street Journal in an article titled "The Rare Disease That Isn't" estimating 5 million Americans could be affected. The Fibromuscular Dysplasia Society of America (FMDSA) has become the recognized leader in the support of Fibromuscular Dysplasia awareness, education, research and patient support. We have achieved our goals by successfully raising money for the purpose of awarding research grants, building awareness programs, and educating the public and medical communities about FMD. We are a not-for-profit organization and programs like these can not succeed without support. Through volunteerism, membership, financial contributions, and event participation, the FMDSA can fulfill our vision and improve the quality of life of those affected by FMD. To join our team simply use Group Code:RUN4FMDSA
FMDSA is also in charge of the water station at the finish line and we are looking for volunteers. We promise we are a really fun group to hang out with, even during a blizzard.
Please feel free to contact us if you have any questions please feel free to call us at 216-834-2410 or Pam Mace at firstname.lastname@example.org Thank you!